|
Resource Guide |
|
A comprehensive directory of national, statewide & local
resources for cancer patients and their loved ones |
When I was diagnosed with breast cancer
at only 32, it was the furthest thing from my mind! Unbelievably, I didnt even know anyone first
hand with cancer and no one in my family had experienced it either. Then suddenly people were coming out of the
woodwork with their experiences and advice - some good, some bad.
I was one of the many patients, family members and concerned friends that set out searching on
the internet for information upon hearing a cancer diagnosis. Sometimes what we find out there is disheartening,
outdated, or plain incorrect. How do we filter through all that in the middle of
dealing with the diagnosis itself? What
resources are available before, during and after treatment? What is out there to support families and
caregivers?
As a
coalition of
We will be
continually updating this guide, so visit the People Connected By Cancer links page at www.okpcbc.org for the most current version and more
weblinks.
We wish you
the best on your cancer journey, and hope this guide provides a little bit of
comfort as you connect with the resources and support available in our great
state of
Sandi Troup
Breast Cancer
Survivor & Support Group Chair
People
Connected By Cancer
|
Table of
Contents |
Patient Advocacy and Financial Aid
Support Groups for all Cancers
Family & Caregiver Support Groups
Palliative Care and End of Life Resources & Support
Pediatric Cancer Support Groups
En Espaņol - Resources in Spanish
En Espaņol - Hispanic Support Groups
American Indian Cancer Resources
American Indian Cancer Support Groups
Colorectal Cancer Support Groups
Gynecological Cancer Resources
Gynecological Cancer Support Groups
Prostate and Testicular Cancer Resources
Prostate and Testicular Cancer Support Groups
Pancreatic Cancer Support Groups
Brain and CNS Cancer Resources
Brain and CNS Cancer Support Groups
Head & Neck Cancer Support Groups
Skin Cancer Resources & Support
Thyroid Cancer Resources & Support
Nutrition and Complementary Medicine Resources
Nutrition and Complementary Medicine Groups
Patient Advocate Foundation
http://www.patientadvocate.org
A national non-profit organization that seeks to
safeguard patients through effective mediation assuring access to care,
maintenance of employment and preservation of their financial stability.
Address: 700 Thimble
Phone: 1-800-532-5274
E-mail: help@patientadvocate.org
NCI: Financial Assistance and Other
Resources for People with Cancer
http://www.cancer.gov/cancertopics/factsheet/Support/financial-resources
Comprehensive list of financial support available from
government and non-profit organizations.
National Coalition for Cancer Survivorship
http://www.canceradvocacy.org/resources
Addresses health insurance issues, employment rights
and financial help
Phone: 1-877-NCCS-YES
(1-800-622-7937)
CancerCare
Assist
http://www.cancercare.org/get_help/assistance/cc_financial.php
Limited grants for certain expenses related to
treatment.
Phone: 1-800-813-HOPE (4673)
Website address or e-mail
United Way
Information on local and national assistance available.
Phone: For most areas in
National Childrens Cancer
Society
http://nationalchildrenscancersociety.com/we_help/program.html
Provides direct financial assistance for
medical and non-medical expenses related to treatment for children with cancer,
including: bone marrow transplantation, cancer treatments, meals during
treatment, health insurance premiums, lodging, pharmaceuticals and
transportation.
Phone: 1-800-5-FAMILY
National Patient Travel
Center
www.PatientTravel.org
Based
on a patients needs and condition, the center provides referrals to free or
specially discounted medical air transport services.
Phone:
1-800-296-1217
|
Patient
Advocacy and Financial Aid (Cont) |
Hill-Burton Free and
Reduced-Cost Health Care Program
http://www.hrsa.gov/osp
Information about how to access
facilities that provide free and reduced-cost services.
Phone: 1-800-638-0742
Partnership for Prescription Assistance
The Partnership for Prescription Assistance brings
together Americas pharmaceutical companies, doctors, other health care
providers, patient advocacy organizations and community groups to help
qualifying patients who lack prescription coverage get the medicines they need
through the public or private program thats right for them.
Phone: 1-888-4PPA-NOW
(477-2669)
Rx Assist
RxAssist offers a
comprehensive database of these patient assistance programs run by
pharmaceutical companies to provide free medications to people who cannot
afford to buy their medicine. Also
provides practical tools, news, and articles so that health care professionals
and patients can find the information they need.
Address: Volunteers in Health
Care
Phone: 401-729-3284
Email: info@rxassist.org
National Cancer Institute
Cancer-specific information, cancer topics like support
and resources, clinical trials, etc.
Address: NCI Public Inquiries Office
Phone:
1-800-4-CANCER (1-800-422-6237) Monday
through Friday 9:00 a.m. to 4:30 p.m.
American Cancer Society
Links to cancer-specific information, treatment
decision tools, info for survivors and family
Phone: 1-800-ACS(227)-2345 (1-866-228-4327 for TTY)
24 hours a day
National Comprehensive Cancer Network (NCCN)
http://www.nccn.org/patients/default.asp
The National Comprehensive Cancer Network (NCCN) is a
not-for-profit alliance of 21 of the worlds leading cancer centers dedicated
to improving the quality and effectiveness of care provided to patients with
cancer. Source for treatement guidelines, clinical trials, cancer resource
links.
Phone: 1-888-909-6226
American Society of Clinical Oncology People Living
With Cancer
http://www.plwc.org/portal/site/PLWC
Comprehensive guides to 120+ types of cancer and
cancer-related symptoms, survivorship, clinical trials, diagnosis and
treatment, coping.
Address: American Society of
Clinical Oncology
Attn:
Communications and Patient Information Department
Phone: 703-519-2927 or
888-651-3038
CancerCare
A national nonprofit organization that provides free,
professional support services for anyone affected by cancer. Includes
education, counseling and assistance.
Address: CancerCare
National Office
275
Phone: 1-800-813-HOPE (4673)
Email: info@cancercare.org
|
Resources for
all Cancers (Continued) |
LIVESTRONG Lance Armstrong Foundation
Will help you understand what to expect, teach you what
questions to ask and give you one-on-one support along the way for survivors,
caregivers, family members or friends.
Source for LIVESTRONG
notebook and other resources.
Phone: 1-866-467-7205
Oncolink
http://www.oncolink.com/oncolife
Information on nutrition, side effects, fertility; develop
a comprehensive survivor care plan
Cancer Survivor Toolbox
http://www.cancersurvivaltoolbox.org
Cancer resources and links, plus an audio program
designed to help cancer survivors and caregivers develop practical skills
to deal with the diagnosis, treatment and challenges of cancer. (Access online, or call to order a free CD)
Address: National Coalition
for Cancer Survivorship
Phone: 1.877.TOOLS.4U (1-800-866-5648)
National Coalition for Cancer Survivorship Resource
Guide
http://www.canceradvocacy.org/resources/guide
A super
resource! Use drop down menus to search
for organizations and resources based on cancer type, cancer-related
information, and essential care.
CancerConsultants.com
http://www.patient.cancerconsultants.com
Provides interested individuals, cancer patients, and
their families and caregivers with access to the most current information about
the prevention, screening, treatment, and overall management of cancer.
American Psychosocial Oncology Society Helpline
http://www.apos-society.org/survivors/helpline/helpline.aspx
A toll-free Helpline through which cancer patients,
caregivers and advocacy organizations may obtain referrals for local counseling
services throughout the United States to
connect cancer patients and their caregivers to professionals skilled in the
management of cancer-related distress.
Phone: Toll Free 1-866-276-7443 (1-866-APOS-4-HELP)
E-mail:
sspencer@apos-society.org (Please
put Helpline Inquiry in subject line)
CancerQuest
This educational website teaches the biology of cancer.
It assumes no previous knowledge on the topic, but goes into a fair amount of
detail with 3-D graphics and audio. Site
also has a Spanish option.
|
Resources for
all Cancers (Continued) |
Oncology Nursing Society - Cancer Symptoms.org
Information to learn about and manage symptoms that
patients undergoing treatment for a cancer diagnoses commonly experience:
anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal
disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction.
Cancer-Pain.org
This Association of Cancer Oncology Resources site
contains information about cancer pain, its causes and available treatments.
Cancer Hope Network
http://www.cancerhopenetwork.org
Free, confidential, one-on-one support to people with
cancer and their families; match patients with trained volunteers who have
themselves undergone a similar experience. Provides support and hope, to help
patients and families look beyond the diagnosis, cope with treatment, and start
living life to its fullest once again.
Address:
Phone: Toll Free
1-877-467-3638
Cancer and Careers.org
http://www.cancerandcareers.org
A great resource for working women with cancer. Also has educational seminar materials,
resources and tips for employers & coworkers, and suggestions on professional
appearance while going through chemotherapy.
Gildas Club
Cancer support for the whole family, the whole
time. Mission is to provide meeting
places where men, women and children living with cancer, along with their
families and friends, can join with others to build a personal network of
social and emotional support as an integral part of cancer treatment. Very extensive online resource section for
cancers.
Address: Gilda's Club Worldwide
/
Phone: 1-888-GILDA-4-U
Caring 4 Cancer
Comprehensive cancer information through the entire
journey, survivor stories, online message boards, support groups Also create a Caring Connections page to keep
an online journal and share with others.
Understanding Cancer
Answers to many questions about the nature, causes, diagnosis,
treatment, and prevention of cancer.
When: 2:00 p.m. each
Tuesday
Where: Cancer Treatment
Centers of
Information: (918) 286-5585
St. Francis Educating/Support Group
Support for St. Francis Hospital Radiation Oncology patients and family
members
When: 11:30 a.m. each Thursday
Where:
Information: Jolene
Sanditen (918) 494-1585
Recurrence (Second Diagnosis)
When: 6:00-7:30 pm,
First Monday each Month
Where: Y-ME office,
4606 E. St -- Building 7,
Information: Y-ME (918)
481-3482
Reach to Recovery
Volunteer Program one-on-one Call for more information
Information: American
Cancer Society (405) 782-1106
Radiation - What You Need to Know
What you need to know about radiation
When: 11:00 a.m. each
Wednesday
Where: Cancer Treatment
Centers of America - Conference Room A - 10109 E. 79th Street (81st Street
& Highway 169) Tulsa
Information: 1-918
286-5585
Look Good... Feel Better
Licensed volunteer cosmetologists demonstrate techniques for enhancing
appearance while undergoing cancer treatment with tips on wigs, turbans,
makeup, skin care, etc.
When: 6:30 p.m. - 1st
Tuesday each month except December
Where: Mary Kay Chapman
Health Plaza, 1819 E. 19th / Tulsa, OK
Information: American
Cancer Society, (918) 743-6767
Chemo Class
An informal class explaining the action of various chemotherapy drugs,
possible side effects, and symptom management. Learn what you can do to manage
and improve your experiences before, during, and after receiving chemotherapy,
and the action of various chemotherapy drugs; and possible side effects.
When: 2:00 p.m. each
Thursday
Where: Cancer Treatment
Centers of
Information: (918)
286-5585
|
Support Groups
for all Cancers (Cont) |
Thursdays Friends
Support
group for cancer survivors and their families.
When: Call for schedule.
Where: Midwest
Regional Medical Ctr /
Information: (405)
610-3627
Safe Haven Support Group
General
cancer support group.
When: Call for schedule.
Where:
Information: Kelley ONeal (405) 231-3002
Cancer Support Group
When: 3rd Tuesday of month, 7:00 P.M.
Where:
Information: Mike Baumgartner, (405) 307-1037
Coping With
Cancer
A general
cancer support group.
When: 2nd
Monday of month, 6:30 pm.
Where: Mercy
Health Ctr /
Information: (405) 752-3694
Cancer Support Group
When: Tuesdays, 6:30 pm.
Where: Grady
Information: Allison Kopycinski (405) 779-2163, Maggie Griffith (405) 222-2551
Living Life with Cancer
An all-cancer support group
for Greater OKC. A time to share and
make new friends while learning from professionals in the field of radiation
therapy, oncology, and psychosocial cancer support.
When: 3rd Thursday of each month,
5:30-7:00 p.m.
Where:
Information: (405) 943-4673
I Can Cope
Cancer 101 education
learn the basics here!
When: Quarterly on Thursdays,
call for times and dates
Where: Mercy Cancer Resource Ctr /
Information: (405) 752-3388
|
Support Groups
for all Cancers (Cont) |
New Days Cancer Support
Group
When: 1st Monday each month, 6:30pm
Where: First United
Information: Cindy Culver (918) 682-3368
Cancer Support Group
When: 2nd Friday each
month, 1:00 pm
Where:
Information: (918) 682-3496
Cancer Support Group
When: 1st and 3rd Thursday each month, 5:00pm
Where:
Information: Martha Owens (918)
686-0351
McAlester Cancer Support
Group
When: 3rd Thursday
each month, 1:00pm
Where: Van Buren House / 1800 Van
Buren,
Information: Joyce McNally (918) 423-8583
Mindfull Chatter
Cancer Support Serving
Multiple Counties in
When: 1st Tuesday each
month, 5:30pm
Where: Milleniums Close to You
3305
NE Loop 286, Suite E,
Information: Toni Finch,
Cancer Support Group
When: 3rd Thursday
each month, 2pm
Where: First United
Information: JoAnn Black (918) 865-2676
Cancer Support
Group- Just In Time, Owasso
When: 3rd Thursday
each month, 6:30pm
Where:
Information: Dora Johnson
1-918 371-2242
Cancer Support
Group-
When: 2nd Tuesday of each month,
11:30am-1pm
Where:
Information: Contact Shelley Simon 1-580-762-9126
|
Support Groups
for all Cancers (Cont) |
Mayes County Support Group
When: 4th
Thursday each month, 7:00pm
Where:
Information: Darla Thompson
1-918 825-2747 or 1-918 637-6038
Mustard Seed
Support for cancer patients and family/friends
When: 11:30 a.m. - 2nd
Saturday each month
Where:
Information: Rosanna
Pasco (918) 492-4953 or Betty Scrivner (918) 299-3413
Pinkey Promise
Where:
Very
new group, they meet in individuals homes, so far includes mostly family and
friends. Meetings held mid-month,
nothing set as of yet.
Information: Monica Gonzales (580)
647-7688
Woodward General Cancer
Support
When: Monthly
Where:
Information: Mary Swafford (580)
256-5511
Stillwater Support Group
When: Monthly
Where: Honska Room,
Information: Barbara Bell (405) 372-1775
When: Monthly
Where:
Information:
Cathy
Hennessey (580)-421-1175
Grove Cancer Support Group
When: 2nd Tuesday of the month at 7:00pm
Where:
Information: Barbara Ott (918) 786-7159 or Billie Parker, (918)
786-6625
Oklahomans for Independent Living
Offering support to individuals and those affected by cancer
When: 8:00 a.m. - 5:00
p.m. weekdays
Where: 321 S. 3rd,
Information: John
Wilkinson (918) 426-6220 x105
New Days Cancer Support Group
Support group for patients, survivors, families and caregivers of cancer
patients.
When: 6:30 p.m. - 1st
Monday each month
Where:
Information: Brian
Matthews (918) 682-3368
|
Support Groups for all Cancers (Cont) |
Living with Cancer Challenge
Open discussion and support for patients and survivors.
When: 10:00-11:30 a.m.
every Tuesday
Where: St. John LaFortune
Cancer Center / 1st Floor Holliman
Building, 1705 E. 19th / Tulsa, OK
74104
Information: Call (918)
744-0123 or www.stjohncancercenter.com
Just in Time
General cancer support group for patients & family/friends
When: 6:30 p.m. - 3rd
Thursday each month
Where:
Information: Susan
Kimball 918-272-2519 or 918-272-1146
Graduate Group
Therapy support group. Self examination and assist each other. Please call
for more information to determine if this group might be helpful to you.
When: 2nd & 4th
Tuesdays
Where:
Information: Roseanna
Smith (405) 842-0003
Rosanna Smith is a licensed family therapist, a licensed professional
counselor, and a cancer survivor.
General Cancer Support Group
When: 1:00 p.m. 3rd
Thursday of each month
Where: Van Buren House
(across from McAlester Clinic),
Information: Franke
Rayburn (918) 423-5081 or Mita Milligan (918) 421-8182
Christ United Methodist Church - Cancer Support Group
Support for cancer patients & family/friends
When: Call for date and
time
Where:
Information: (918) 747-8601
Cancer Support Group
Support Group for patients, survivors, families and caregivers of cancer
patients.
When: 1:00 p.m. - 2nd
Friday each month
Where:
Information: Dr. Linda
Platt (918) 687-4871 or (918) 310-0331
Cancer Support Group
Support group for cancer patients, their families/friends.
When: 12:00 - 1:00 -
4th Thursday each month
Where:
Information: Barbara
Bale (405) 372-1775
|
Support Groups
for all Cancers (Cont) |
Asbury United Methodist Support Group
A support group for those living with cancer, their family and friends.
When: 4:00-6:00 p.m.
2nd Sunday each month (April & May - 3rd Sunday)
Where: 6767
Information: (918) 492-1771
American Cancer Society - Mayes county Support Group
Support for those with cancer
When: 1st Thursday each
month
Where:
Information: Darla
Thompson 918-825-4224
PUSH: Positively Uniting Survivors through Hope
A support group open to the survivors of any type of
cancer
When: 2nd Monday of the
month, 6:30-8pm
Where:
Information: (405) 752-3388
Been There Done That (Stem Cell Recipients)
When: 6:30 - 8:30 p.m.
1st Monday of each month
Where: Y-Me Office,
4606 E 67th St, Bldg 7, Suite 314, Tulsa
Information: Y-Me (918)
494-8808 Beth Bordingley
Look
Good, Feel Better
Licensed volunteer cosmetologists demonstrate techniques for
enhancing appearance while undergoing cancer treatment with tips on wigs,
turbans, makeup, skin care, etc.
When: Offered 4 times a year, call for dates and
times
Where:
Information: (405) 943-4673
Free Counseling and Support Services
Support for persons affected by cancer in
Where:
Information: (405) 943-4673
For Appointment: Andi
Lotsa Helping Hands
http://www.caringconnections.lotsahelpinghands.com
A great online resource to distribute the burden of
caregiving among a community of volunteers.
Define volunteer activities using the supplied templates, and begin
inviting members to the community. Volunteers can then easily view and sign up
for any number of available tasks, review their current commitments, and will
automatically be sent email reminders of upcoming obligations.
Net of Care
http://www.netofcare.org/content/getting_started
Information and resources for caregivers. Site also provides a downloadable Caregiver
Resource Directory intended to help family caregivers feel less alone and
overwhelmed. It offers resources, facts, and advice about caring for a loved
one, as well as the caregiver.
National
http://www.caregiving.org
Dedicated to providing support to family
caregivers and the professionals who help them and to increasing public
awareness of issues facing family caregivers.
National Family Caregivers
Association
http://www.nfcacares.org
Educates, supports, empowers and speaks
up for the more than 50 million Americans who care for loved ones with a
chronic illness or disability or the frailties of old age.
Phone:
1-800-896-3650
Kids Konnected
Kids Konnected's mission is to provide friendship,
understanding, education, and support for the children who have a parent with
cancer, or have lost a parent to cancer. Childrens camps, books, youth
leadership program.
24-Hour Hotline for Kids to
call: 1-800-899-2866
E-mail:
info@kidskonnected.org
KidsCope
Mission is to help children and families understand the
effects of cancer or chemotherapy on a loved one, to provide suggestions for
coping, and to develop innovative programs and materials that communicate a
message of hope to diverse families coping with this crisis.
Childrens Treehouse Foundation
http://www.childrenstreehousefdn.org/ourbook.html
Interactive workbook to help kids cope with news that
parents have cancer
Parents Support Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 2nd Wednesday of
the month, 12:00 pm
Where: Conference Room,
Childrens
Hospital at OU Medical Center /
Facilitator:
Grupo De Apoyo De Cancer
When: Call for schedule.
Where: Integris SW Medical Center / 1001 S.W. 44th
Street / OKC, OK 73109
Information: En Espaņol (405) 636-7650 or (405) 636-7982
Strength For
Caring
Education & support for family cancer caregivers.
When: Call to
schedule
Where:
Information:
(405) 943-4673
http://okpalliative.nursing.ouhsc.edu
A comprehensive resource for
palliative and end of life care.
Numerous local and national links are available on the Resources page.
Address: OU
Phone: (405) 271-1491, ext
49194
E-mail: ok-palliative@ouhsc.edu
Caring Connections
A wide range of resources about end-of-life care to
include hospice info, palliative care, advance directives, caregiving, pain,
grief, financial planning, and issues relating to the workplace.
Phone: 1-800-658-8898 (Spanish
helpline 1-877-658-8896)
E-mail: caringinfo@nhpco.org
National Pain Foundation Cancer Pain and Palliative
Care
http://www.nationalpainfoundation.org/MyPain/contentdirectory_Cancer.asp
Education and resources for cancer pain for patients
with cancer.
Address:
AARP End of Life
http://www.aarp.org/families/end_life
Educational sections for estate planning, financial
powers of attorney, hospice, communicating wishes, and resources for family
members coping with end of life issues.
New Horizons
This is a group open to anyone experiencing grief.
When: 2nd & 4th Mondays of the month, call for times
Where:
Information: (405) 752-3388
The Tristesse Center
Grief counseling center for both children and adults. Children, teens, and
adult group sessions offered. Art therapy and individual counseling also
available. When:
call for times
Where: The
Information: (918)
587-1200, www.thetristessecenter.org
Grief and Life Changes Support Group
Help in dealing with life's changes, with the loss of a friend or family, or
dealing with cancer
When: 6:15 pm to 8:15
p.m. each Wednesday
Where: Nick Reynolds
Funeral Home, 1916 S Sheridan, Tulsa (call for other locations)
Information: Lynda
Alford, Vista Care Family Hospice, (918) 622-4828
Grief and Life Changes Support Group
Help dealing with life's changes, the loss of a friend or family, or dealing
with cancer.
When: Call for
schedules
Where: Tulsa Jewish
Retirement & Health Center 2025 E 71, Zarrow Manor
(Residential side - 2nd floor); call for other locations
Information: Lynda
Alford, Vista Care Family Hospice, (918) 622-4828
Bereavement and Grief Services
Offering support and/or services to those who are grieving the death of a
loved one. Call to have your name added to the mailing list.
When: every Tuesday from 5:30-7 p.m.and Thursday from 3:30-4:30
p.m.
Where:
Information:
Bereavement Coordinator (918) 747-7901
American Cancer Society - Bereavement and Grief Services
Support and/or services to those who are grieving the death of a loved one.
When: 7:00 p.m. - 2nd
Tuesday each month
Where:
Information: Susan
Johnson (918) 825-1600
Bereavement Support Group - Owasso
For people who have lost loved ones
When: 4:00 p.m. each
Thursday
Information: Suzanne
Davis or Don McAllister (918) 747-7901
Pediatric
A web site for parents, friends, and families of
children who have or had childhood cancer. This resource center was created by
and for people who know young people who are recovering from cancer.
Candlelighters Childhood
Cancer Foundation
http://www.candlelighters.org
Committed
to providing support, education and advocacy for children and adolescents with
cancer, survivors of childhood/adolescent cancer, their families and the
professionals who care for them.
Starlight StarBright Childrens Foundation
Help seriously ill children and their families cope
with their pain, fear and isolation through entertainment, education and family
activities.
Phone: 1-800-315-2580
E-mail: info@starlight.org
Parents Support Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 2nd Wednesday of
the month, 12:00 pm
Where: Conference Room,
Childrens
Hospital at OU Medical Center /
Facilitator:
Childrens Support Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 1st and 3rd
Monday of every month, 5:00 pm
Where: 10 West
Childrens
Hospital at OU Medical Center,
Facilitators: Alisia Davis, MSW (405)
271-8001 / Sharelle Hushbeck, MSW / Ralisha Johnson, MSW
Ulman Cancer Fund for Young Adults
Addresses areas of cancer support, advocacy, and
education specific to young adults dealing with cancer.
Address: PMB
#505 /
Phone: 1-888-393-FUND
(3863)
Email:
info@ulmanfund.org
I'm Too Young For This! Cancer
Foundation for Young Adults
http://imtooyoungforthis.org
A
global support community for young adults affected by cancer who get busy
living and rock on. Our mission is to end isolation and improve quality of life
by providing one-stop access to hard to find resources, peer support and social
networks.
Planet Cancer
Young adults with cancer slip into a lonely no-man's
land. Too old for the instant community of a children's hospital, they still
don't fit in with the over-50 community that overwhelmingly populates adult
cancer wards. Because young adults with cancer are a relatively small group,
the difficulty of finding peer support is increased exponentially, forcing many
to deal in isolation with issues specific to this age and stage of life: dating
with cancer, disclosure to a potential employer, long-term insurance issues,
moving back home, loss of fertility, or having to quit school or a newly-launched
career. Planet Cancer exists so that no young adult will have to endure such
isolation again.
LIVESTRONG Young Adult
http://www.livestrong.org/site/c.jvKZLbMRIsG/b.865471/k.B49/Young_Adult_Alliance.htm
A coalition of organizations with the goal to improve
the survival rates and quality of life for young adults with cancer between the
ages of 15 and 40.
Young Survival Coalition
Dedicated to the concerns and issues that are unique to
young women and breast cancer. YSC also serves as a point of contact for young
women living with breast cancer.
Fertile Hope
Fertile Hope is a national, nonprofit organization
dedicated to providing reproductive information, support and hope to cancer
patients and survivors whose medical treatments present the risk of
infertility. Information on insurance
coverage and financial assistance for fertility preservation and parenthood
after cancer.
SHOUT Young Women Cancer Survivors
(Strength, Healing, Optimism, Understanding, Together)
When: Usually 4th Thursday of
month, 6:30pm (check website for events)
Where: Locations vary, call ahead or
check website
Information: Sandi Troup: (405) 962-9012 or
Molly Fritch (405) 740-7705
Website: www.shout-okc.org
Young Women's Group
When: 6:30-8:30pm,
First Tuesday
Where: 4606 E. 67
Street - Building 7,
Information: (918)
494-8808
Zenith
This unique group offers networking opportunities for
all young adult cancer survivors.
When: 1st Tuesday of
the month, 5:30-7pm
Where:
Information: (405) 752-3388
Instituto Nacional del Cáncer
Brindamos información para aumentar su conocimiento
sobre el cáncer y contestamos las preguntas más frecuentes; entre ellas, ŋqué es el
cáncer? Nuestro enfoque es la comunidad de habla hispana en los Estados Unidos.
Usted encontrará una lista de los mitos y creencias más comunes en la comunidad
hispana o
Teléfono:
1-800-422-6237 / (1-800-4-CANCER)
Sociedad
Americana
http://www.cancer.org/docroot/ESP/ESP_0.asp
Convivir con el cáncer, PLWC
En este sitio Web puede buscar información para ayudar
a los pacientes y las familias a tomar decisiones informadas sobre el cuidado
de la salud. Toda la información en PLWC cuenta con la aprobación de oncólogos.
http://www.plwc.org/portal/site/PLWC
(select PLWC
En Espaņol )
Teléfono:
1- 888-651-3038
NCCN
Guías de Tratamiento para los
Pacientes Versiones en Espaņol
http://www.nccn.org/patients/patient_gls.asp
Teléfono:
1-888-909-NCCN (6226)
CancerCare
La misión de CancerCare es asegurar
de que las personas que tienen cáncer y sus seres queridos tengan el apoyo que
necesitan para sobrellevar los retos emocionales, físicos y financieros de
vivir con cáncer.
http://www.cancercare.org/espanol
Teléfono: 1-800-813-4673
La Patient Advocate
Foundation
La Patient Advocate
Foundation procura defender los derechos
http://www.patientadvocate.org/index.php?p=279
Teléfono:
1-800-516-9256 ext. 1417
National Coalition for Cancer Survivorship Resource
Guide
http://www.canceradvocacy.org/resources/guide
A comprehensive list of over 25 sites with Spanish
support. Select Spanish Resources in the
Cancer-Related Information pull-down menu.
CancerConsultants.com - Centro de Recurso por Oncología
http://patient.spanish.cancerconsultants.com
Tipos de cáncer, Tratemiento del cáncer, diagnosticado
nuevamente
Integris Health Grupo de Apoyo de Cáncer 2007
Las reuniones se llevan a cabo en la sala de espera del Centro de Cáncer de
INTEGRIS Southwest Medical de las 6:00 pm a las 7:00 pm. Para más información
favor llamar al Integris HealthLine (405) 951-2277 marcando # 2 para Espaņol
When: Las reuniones son
el primer lunes del mes
Where: del Centro de
Cáncer dell Integris SW Medical
Information: María
Aymat (405) 636-7560
Spanish-Speaking Support
Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 1st Tuesday of
every month, 6:00 pm
Where:
Facilitator: Maria Aymat (405) 636-7560
Spanish-Speaking Support
Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 1st Wednesday of
every month, 5:00 pm
Where:
OU
Facilitator: Carmen Soriano, RN (405)
271-7930
National Office of Native Cancer Survivorship
Dedicated to improving the quality of cancer care and
survivor support for American Indians and
Address: Office of Native Cancer Survivorship ONCS
13790
Phone: 1-800-315-8848 (Toll
free Cancer Survivor help line), (907) 333-2071 for more info
E-mail: info@oncs.org
Native Cancer Information
Resource Center and Learning Exchange (C.I.R.C.L.E)
http://www.mayo.edu/nativecircle
Native
C.I.R.C.L.E. exists to stimulate, develop, maintain and disseminate culturally
appropriate cancer information materials for American Indian/Alaska Native
educator, healthcare leaders and students.
Address: Native C.I.R.C.L.E
Native American Cancer Research
Resources for survivors, caregivers and educators.
NACES Quality of Life Tree
Addresses quality of life and survivorship issues:
spirituality, communication, treatment, clinical trials, treatment side
effects, other health problems (also called "co-morbidities", like
diabetes and cancer/arthritis and cancer) and other resources.
Phone: 1-800-537-8295 to talk to a patient advocate
Sister Circles (Native-American Survivors)
When: 6:00 p.m. 3rd
Thursday of each month
Where: Hastings
Hospital Dining Room,
Information: Y-ME (918)
494-8808
Breast
Cancer Support Group
When: 2nd Tuesday of month, 5:00pm.
Where:
4913
W.
Information: (405) 948-4900
Take Charge!
http://www.health.state.ok.us/program/cds/breastcervical.html
Phone:
http://www.health.state.ok.us/program/cds/ocare.html
Phone:
Project Woman Coalition
Project Woman Coalition is a
nonprofit collaborative organization of representatives from area hospitals,
mammography facilities, city, county and state agencies, community-based
organizations, physicians, nurses, and breast cancer survivors who share a
common goal: To increase breast cancer awareness, to provide access to
screening and diagnostic services and to improve the breast health of Oklahoma
women.
Address:
Phone:
(405) 752-8487
http://www.tulsaprojectwoman.com
In cooperation with
medical facilities and concerned individuals, Tulsa Project Woman, Inc. is
dedicated to providing breast health education, and access to breast health
care. This includes surgical consultations, free mammography, diagnostic
procedures and surgical services that will facilitate the early diagnosis of
breast cancer for women with no health insurance and limited financial
resources.
Address:
Phone:
(918) 834-7200
The American Breast Cancer
Foundation
http://www.abcf.org
Provides
financial assistance to uninsured and underinsured women and men of all ages
for breast cancer testing. This includes annual screenings for women over 40,
as well as support services for breast cancer patients.
Phone:
1-877-Key-2-Life (1-877-539-2543)
|
Breast Cancer
Resources (Cont) |
Breast Cancer.org
Dedicated to providing the most
reliable, complete, and up-to-date information about breast cancer. Offers survivor stories, chat rooms, pictures
of breast cancer and reconstruction, online conferences and other great links.
Living Beyond Breast Cancer
A
nonprofit organization dedicated to empowering all women affected by
breast
cancer to live as long as possible with the best quality of life.
Helpline: 1-888-753-5222
Imaginis
A breast
cancer and women's health resource. Within our thousands of pages of
physician-edited information, we explain complicated medical terms in everyday
language to assist you in making informed decisions.
Dr. Susan Love Research Foundation
Website
provides comprehensive information about breast cancer, womens health, and the
Foundations work to eradicate breast cancer.
Use the Health Watch blog to share thoughts and ask questions.
National Breast Cancer Foundation
http://www.nationalbreastcancer.org
Mission is to save lives by increasing awareness of
breast cancer through education and by providing mammograms for those in
need. Complete resource library, and
online educational video Beyond the Shock. (Also in Espaņol.)
Susan G. Komen Foundation
http://cms.komen.org/komen/index.htm
Comprehensive
information about breast cancer, to include treatment, survivorship,
complementary therapies, and breast cancer research.
Helpline: 1-800-IM-AWARE
(1-800-462-9273) Se habla espaņol.
National
http://www.nabco.org
NABCO provides information about breast
cancer and acts as an advocate for the legislative concerns of breast cancer
patients and survivors.
Phone: 1-888-806-2226
|
Breast Cancer
Resources (Cont) |
Y-ME National Breast Cancer Organization
http://www.yme.org
The mission of Y-ME National Breast Cancer Organization is to ensure,
through information, empowerment and peer support, that no one faces breast
cancer alone. 24/7 support through national hotline; interpreters available for 150
languages. Site has information on
breast cancer, quality of life and local affiliates / support groups.
Hotline: English 1-800-221-2141 / Espaņol 1-800-986-9505
Facing Our Risk of Cancer Empowered (FORCE)
Mission is to improve the lives of individuals and
families affected by hereditary breast and ovarian cancer. Information on latest research, and resources
to determine whether they are at high risk for breast and ovarian cancer due to
genetic predisposition, family history, or other factors.
Phone: 1-866-288-7475 (RISK)
Toll free helpline
E-mail: info@facingourrisk.org
FDA - Information on Breast
Implants
http://www.fda.gov/cdrh/breastimplants/index.html
Site provides information on
both approved breast implants and investigational (under study for safety and
effectiveness) breast implants to aid in reconstruction decisions.
American Society of Plastic
Surgeons
http://www.plasticsurgery.org/patients_consumers/index.cfm
Information on breast
reconstruction procedures, 3-D animation, photo gallery
Pamper yourself and bring a friend for a day away!
When: 2 sessions in
Fall, 2 sessions in Spring
Where: Log Cabin Hope
Unitarian Property 82nd and
Information: Call the
Y-ME office at (405) 494-8808 to register or Email: bethy-me@sbcglobal.net
Reach
To Recovery
One-on-one
volunteer visitation program for women with breast cancer.
When: Call to arrange a visit
Where: American Cancer Society
6525
N. Meridian,
Information: Sue Ellis (405)
843-9888
Breast Cancer Wellness Group
When: Monthly (5:00-6:15
pm)
Where:
Information: Kelly
O'Neil 405-231-3002
SHOUT Young Women Cancer Survivors
(Strength, Healing, Optimism, Understanding, Together)
Group is open to all cancers, but largely young breast cancer survivors
When: Usually 4th Thursday of
month, 6:30pm (check website for events)
Where: Locations vary, call ahead or
check website
Information: Sandi Troup: (405) 962-9012 or
Molly Fritch (405) 740-7705
Website: www.shout-okc.org
Mondays
Friends
Breast
cancer support group.
When:
Call for
schedule
Where:
Information: (405) 620-3527
Breast
Cancer Awareness & Support Group
When: 1st Monday of the month, 7:00pm.
Where:
Information: Judy Hays, (405) 723-0393 or (405) 672-2147
Breast
Cancer Support Group
When: 2nd Tuesday of month, 5:00pm.
Where:
4913
W.
Information: (405) 948-4900
SOS - Support Our Suvivors
Breast cancer support group
When: 12:00 - 1:00 p.m.
- 3rd Thursday each month
Where: OU Breast
Institute, 3rd Floor OU Physicians Building
Information: Tonya
Hughes (405) 271-8001, Ext. 48527
|
Breast Cancer
Support Groups (Cont) |
Promise
Breast cancer support for women, nearing 20 years of service to survivors
When: 3rd Monday of the
month, 7-9pm
Where: Mercy Cancer Resource Ctr /
Information: (405) 752-3388
Pink Ribbon Sisters (Newly Diagnosed & Survivors)
When: 2nd Monday
of month 6:45-8:00pm, and 3rd Tuesday of month 6:45-8:00
Where: 4606 E. 67
Street - Building 7, Suite 314, Tulsa, OK 74136
Information: Y-ME (918)
494-8808
Norman Regional Breast Cancer Support Group
Meetings are a 30-minute educational topic followed by open discussion.
When: 7:00 p.m. - 1st
Tuesday each month
Where:
Information: Karen
Saunkeah (405) 307-2620
Breast Cancer Support Groups
Includes support for stem-cell recipient, lymphedema, newly diagnosed,
recurrence & support groups for ethnic specified populations. Groups added
regularly.
When/Where: Call for dates & times
Information: Y-ME (918)
494-8808 Beth Bordingly
Breast Cancer Support Group (Breast Imaging of
For any woman diagnosed with breast cancer, of any age
When: 7 p.m. first
Thursday of the month
Where: Breast Imaging
Oklahoma,
Information: Melissa
Craft, R.N., PhD mcraft@breastok.com
or call (405) 844-2601 ext. 1031
SOS - Strength Optimism
and Support
Breast Cancer Survivor Support Group
When: 6:00-7:30 p.m.,
2nd Monday of each month
Where:
Information: Lezlie
Brown (405) 636-7982
Young Women's Group
When: 6:30-8:30pm,
First Tuesday
Where: 4606 E. 67
Street - Building 7,
Information: (918)
494-8808
Lunch Bunch Breast Cancer Support Group
Includes educational information, sharing, moments for
relaxation and laughter.
When: 1st Wednesday of the month, 12:00-2:00pm,
reservations required
Where:
Information: (405) 943-4673
American Lung Association
Dedicated to preventing lung disease and promoting lung
health. Website has interactive decision support tools to answer the question
What does the clinical information mean to me? You will receive a personalized treatment
options report tailored to your diagnosis. Your report will provide the pros
and cons of each treatment, side effects, questions to ask your physician, plus
access to relevant summaries of clinical studies.
Also in Espaņol.
Phone:
1-800-548-8252
E-mail: info@lungusa.org
Lung Cancer
Dedicated solely to patient support and advocacy for
people living with lung cancer and those at risk for the disease. Offers programs designed to help improved the
quality of life of people with lung cancer and their families. Programs include
education about the disease, psychosocial support, and advocacy about issues
that concern lung cancer survivors.
Phone: 1-800-298-2436
E-mail: info@alcase.org
Its Time to Focus on Lung Cancer
Site contains relevant and easy to understand
information about lung cancer such as Lung Cancer 101, facts about clinical
trials, survivor stories and support resources.
Phone: 1-877-646-LUNG
(1-877-646-5864)
E-mail: info@cancercare.org
http://www.meds.com/lung/lunginfo.html
An electronic library of comprehensive educational materials
on cancer for healthcare professionals and patients.
Better Breathers
A
group for those coping with chronic lung disease.
When: Call for schedule.
Where:
Information: (405) 943-5644
Better Breathers
A
group for those coping with chronic lung disease.
When: Call for schedule.
Where: Deaconess Medical Office North / 5401
Information: Contact: (405) 604-6000
Better Breathers
A
group for those coping with chronic lung disease.
When: Call for schedule.
Where:
Information: (405) 610-3627
Sooner Nu-Voice
Laryngectomee Club
When: Call for schedule.
Where: Support group and patient
visitation.
Information: Larry Bisel: (405) 720-0884 / Julie Bornhorn (405)
947-4008
http://www.ccalliance.org
Dedicated to ending the suffering caused by colorectal
cancer through patient support, education, research and advocacy. The CCA
website includes information about screening, treatment, clinical trials,
quality of life, financial issues, buddies program and much more.
Survivor Helpline:
1-877-422-2030 / Phone: (877) 422-2030
E-mail: info@ccalliance.org
Colorectal
Cancer Coalition (C3)
http://www.fightcolorectalcancer.org
Colorectal cancer is preventable,
treatable, and beatable. Website offers
a guide to aid you in understanding your diagnosis and treatment options and to
provide you with a range of resources to help you move through your journey
with colorectal cancer.
Address: 1225 King Stret, 2nd Floor,
Phone: 703-548-1225
E-mail: info@fightcolorectalcancer.org
National Colorectal Cancer Research
http://www.eifoundation.org/national/nccra
Co-founded by Katie Couric and Lily Tartikoff, the
NCCRA is dedicated to the eradication of colon cancer by harnessing the power
of celebrity to promote education, fundraising, research, and early medical
screening. The site offers information on screening tests, a health checklist,
a factsheet, and information on clinical research.
Phone: 1-800-872-3000
Colorectal Cancer Network
http://www.colorectal-cancer.net
Mission is to eliminate colon cancer and support
patients. Hosts a comprehensive website
with information, resources and support.
Phone: (301) 879-1500
E-mail: CCNetwork@colorectal-cancer.net
The Susan Cohan Kasdas
The foundation aims to educate everyone about
screenings and ensure that no individual is unable to access proper screening,
providing psychological support for those with the disease and aiding clinical
trials and cutting-edge research.
Information about screening, colostomy, and illustrations of surgical
options.
Phone: (410) 244-1778
E-mail: info@coloncancerfoundation.org
|
Colorectal
Cancer Resources (Cont) |
United Ostomy Associations of
UOAA is an association of affiliated, nonprofit,
support groups who are committed to the improvement of the quality of life of
people who have, or will have, an intestinal or urinary diversion.
American Society of
Patients
& Consumers link provides patients and the general public with up-to-date
and useful information about diseases of the colon, rectum and anus. ASCRS offers a variety of educational
materials and informational brochures.
United Ostomy Association
Support Group
When: Call for schedule
Where:
Information: Nancy Dobbs: (405) 752-3183
Ostomy Support Group
Support Group for ostomy patients and their family and/or friends.
When: 4:00 p.m. - 4th
Monday each month
Where: McAlester
Regional Health Center One Clark Bass Blvd.
Information: Connie
Davis RN 918-426-1800
Tulsa Ostomy Association
UOA Mission: The United Ostomy Association is a volunteer-based health
organization dedicated to providing education, information, support, and
advocacy for people who have had or will have intestinal or urinary diversions.
When: 4th Thursday each
month (except Nov. & Dec.) 7:00-8:30 p.m.
Where:
Information: Kay Pugh
918-446-8542 Rick Stephens 918-437-1317
http://www.ostomyok.org/tulsa/
Take Charge!
http://www.health.state.ok.us/program/cds/breastcervical.html
Phone:
http://www.health.state.ok.us/program/cds/ocare.html
Phone:
National Ovarian Cancer Coalition (NOCC)
NOCC raises awareness about ovarian cancer and promotes
education about the disease. Offers publications for newly diagnosed, support
groups, a database of gynecologic oncologists searchable by state, and other educational
materials.
Address:
Phone: 1-888-OVARIAN
(1-888-682-7426)
E-mail: nocc@ovarian.org
National Cervical Cancer Coalition (NCCC)
A grassroots nonprofit organization dedicated to
serving women with, or at risk for, cervical cancer and HPV disease.
Ovarian Cancer National
Works to increase public and professional understanding
of ovarian cancer and to advocate for research. The
Address:
Phone: 1-866-399-6262 (Toll
Free)
E-mail: ocna@ovariancancer.org
The Ovarian Cancer Research Fund (OCRF)
An organization devoted to the formulation of early
diagnostic treatment programs and research towards the ultimate conquest of
ovarian cancer. Supports patients and
their loved ones in understanding this disease and its treatment as well as to
provide outreach programs and raise public awareness.
Phone: 1-800-873-9569
E-mail: info@ocrf.org
|
Gynecological
Cancer Resources (Cont) |
Gynecologic Cancer Foundation - Womens Cancer Network
Keeps women informed and to enable them to be their own
health advocates. Assists women who have
developed cancer, as well as their families, to understand more about the
disease, learn about treatment options, and gain access to new or experimental
therapies.
Address: 230 W. Monroe,
Phone: 1-800-444-4441
E-mail: info@thegcf.org
Eyes on the Prize
Online support and information for gynecologic cancer
survivors.
Facing Our Risk of Cancer Empowered (FORCE)
Mission is to improve the lives of individuals and
families affected by hereditary breast and ovarian cancer. Information on latest research, and resources
to determine whether they are at high risk for breast and ovarian cancer due to
genetic predisposition, family history, or other factors.
Address: 16057
Phone: 1-866-288-7475 (RISK)
Toll free helpline
E-mail: info@facingourrisk.org
CONVERSATIONS: The International Ovarian Cancer
Connection
An international newsletter for those fighting ovarian
cancer providing hope, humor, support and information about treatment options
and coping tips. Survivor-to-fighter matching service available.
(806) 355-2565
HOPE
in Okahoma
A
support group for women with gynecological cancers.
When: 1st Saturday of the month
Where: OU
Information: (405) 271-8001, Ext. 48165
Website: http://www.hope.ouhsc.edu
"Anna's Belles" Ovarian Cancer Support Group
Support for ovarian cancer patients
When: Once a month on
Saturday
Where: Cancer Treatment
Center of Tulsa, 10109 D 79th St, Conference Room D, 1st Floor
Information: Anna
Schlichting, RN (918) 247-6308 or anna@intcon.net
SHARE
http://www.sharecancersupport.org
A NY-based organization that offers toll-free survivor-led
support to those affected by breast or ovarian cancer to ensure that no one
faces cancer alone.
Ovarian Hotline:
1-866-537-4273 (Also available in Espaņol and other
languages)
Men's Cancer Resource Group
A support network that runs a 24-hour information line
serving prostate cancer survivors and concerned professionals.
Phone: 1-800-227-2345
National Prostate Cancer Coalition
http://www.fightprostatecancer.org
The National Prostate Cancer Coalition (NPCC) sets the
standard for rapidly reducing the burden of prostate cancer on American men and
their families through awareness, outreach, and advocacy.
Address:
Toll-free: 1-888-245-9455 /
Phone: (202) 463-9455
E-mail: info@fightprostatecancer.org
US TOO! Prostate Cancer Education & Support
Dedicated to communicating timely and reliable
information enabling informed choices regarding detection and treatment of
prostate cancer. Strives to enhance the quality of life for all those affected
by prostate cancer.
Address:
Toll-Free: 1-800-80-UsTOO
(1-800-808-7866) / Phone: (630) 795-1002
E-mail: ustoo@ustoo.org
Prostate Cancer Institute
http://www.prostate-cancer-institute.org
Information regarding prostate cancer and treatment
options for prostate cancer patients and their families.
Address:
Toll-Free Nurse Line:
1-866-469-7733 / Phone: (952) 852-5560
E-mail:
publisher@prostate-cancer-institute.org
The Testicular
A comprehensive site with online support and resources
including specific information on surgery, testing, treatment, reconstruction
and fertility.
Address:
Us Too!
Prostate
cancer support group.
When: 3rd Tuesday of each alternating
month, 6:00 pm.
Where: Location alternates between Deaconess and INTEGRIS
Baptist
Information: Deaconess (405) 604-4298 or INTEGRIS Baptist
(405) 943-4673
Us Too!
Prostate cancer support
group
When: 3rd Tuesday of
the month, 6-7:30pm
Where: Mercy Cancer Resource Ctr /
Information: (405) 752-3388
Us Too!
Prostate cancer support group
When: 7:00 p.m. - 2nd
Thursday each month
Where:
Information:
Us Too! Shawnee Regional
Prostate cancer support group
When: 3rd Mon 6 - 7:30
pm
Where: Unity North
Shawnee Cancer Ctr, 1102 W. MacArthur
Information: Marla
Mauldin RN BSN OCN (405) 878-3445
"Man to Man" Prostrate Cancer Support Group
Prostate cancer support group for men and their spouses.
When: 7:00 p.m. - 2nd
Monday each month
Where: Cancer Treatment
Centers of America - Conference Room C, 1st floor - 10109 E. 79th Street (81st
Street & Highway 169) Tulsa
Information: (918)
286-5585
Man to Man Prostate Cancer Support Group
Group education, discussion and support for men and their families that are
touched by prostate cancer.
When: 6:00-8:00 p.m.
3rd Tuesday of each month
Where:
Information: Elton
March 1-580-439-5052, OR 1-580-251-8557 / 8844
Man to Man
Prostate cancer support group for men and their spouses
When: call for meeting
information
Information: Mike
McGowan (918) 424-6453
The Testicular
TC-NET is a testicular cancer email support group with 600-700
subscribers. On average, the list
generates 15-25 emails a day, less on weekends.
Visit address below to subscribe to the listserve.
Information: http://www.acor.org/TCRC/tc-net.html
Pancreatic Cancer Action Network (PanCAN): Patient and
Liaison Services
Connect with other survivors and caregivers, attend
support groups and educational meetings, and request assistance with financial
or insurance issues. Complete list of educational and support resources,
inspirational stories, and tips from other survivors.
Address:
Phone: 1-877-272-6226
Email: pals@pancan.org
Pancreatica.org
A worldwide gathering point on the Internet for the
latest news and information in regard to clinical trials and other medical care
in the treatment of pancreatic cancer. Comprehensive links page, plus frequently
asked questions about pancreatic cancer, clinical trials database, medical
literature and survivor stories.
Address:
Phone: (831) 658-0600
Southwest Program for Pancreatic Cancer
http://w3.ouhsc.edu/surgery/pancan/index.htm
A program to establish a network consisting of every
pancreatic cancer patient and survivor who resides in
Address: Daniel J. Brackett / Surgery /
OUHSC,
Phone: (405) 271-2108
E-mail: daniel-brackett@ouhsc.edu
The Lustgarten Foundation for Pancreatic Cancer
http://www.lustgartenfoundation.org
Foundation to advance the scientific and medical
research related to the diagnosis, treatment, cure and prevention of pancreatic
cancer; provides informational support for pancreatic cancer patients, their
families, and friends. Download
Understanding Pancreatic Cancer from the patient resources.
Phone:
1-866-789-1000
Pancreatic Cancer Support
Group
When: Last
Thursday of each month, 6:00 pm
Where:
O'Donoghue
Conference Room,
Information:
Daniel Brackett, (405) 271-2108, daniel.brackett@ouhsc.ecu
Website: http://w3.ouhsc.edu/surgery/pancan/index.htm
The Leukemia and Lymphoma Society
The goal of the society is to find cures for leukemia,
lymphoma, Hodgkin's disease, and multiple myeloma and to improve the quality of
life of patients and their families. The society provides patient financial aid
for specified treatment expenses and transportation, family support groups,
First Connection (a professionally supervised peer support program), referrals
and school re-entry materials.
Address: 500 N. Broadway,
Phone: (405) 943-8888 / 1-888-828-4572 (Toll Free)
E-mail: sherry.martin@ils.org
International Myeloma Foundation (IMF)
Supports education, treatment, and research for
multiple myeloma. They provide a toll-free hotline, seminars, and educational
materials for patients and their families. Assistance is provided in many
languages.
Phone: 1-800-452-CURE
(800-452-2873)
E-mail: theIMF@myeloma.org
Lymphoma Research Foundation (LRF)
The LRF website offers a wide range of support services
and programs for patients and loved ones affected by lymphoma. Whether you are
newly diagnosed, want detailed information about lymphoma, looking for ongoing
support, or seeking help with long-term survivorship, LRF is here to help.
Phone: 1-800-500-9976
E-mail: helpline@lymphoma.org
The Multiple Myeloma Research Foundation (MMRF)
Detailed explanations of myeloma, treatment options and
clinical trials. Free informational
booklets is designed to help newly diagnosed patients and their friends and
families to better understand multiple myeloma and its complications.
Address:
Phone: (203) 972-1250
E-mail: info@themmrf.org
All About Your Blood
Learn about the connection between blood and cancer, and blood cancers.
When: 2:00 p.m. each
Thursday
Where: Cancer Treatment
Centers of
Information: (918) 286-5585
Momentum
Support group for cancer survivors who have had or will
have a bone marrow, stem cell, or cord blood transplant.
When: 2nd Tuesday of
the month, 5:30-7pm
Where:
Information: (405) 752-3388
Family Support Group
For
anyone impacted by blood cancers.
When: 1st Wednesday of month, 7:00pm
Where: Radiation Oncology Waiting Area
Facilitator: Peg Andre, RN, OCN (918) 639-7495
Myeloma Support Group
When: 3rd Wednesday of
the month, 1:30 pm
Where:
Facilitator:
Family Support Group
For
anyone impacted by blood cancers.
When: 1st Thursday of month, 6:00pm
Where:
Facilitator: Barbara Underwood, RN, OCN (405) 943-9988
Myeloma Support Group
When: 3rd Thursday of
month, 6:00 pm
Where:
OU
Facilitator:
Parents Support Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 2nd Wednesday of
the month, 12:00 pm
Where: Conference Room,
Childrens
Hospital at OU Medical Center /
Facilitator:
|
Blood Cancer
Support Groups (Cont) |
Childrens Support Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 1st and 3rd
Monday of every month, 5:00 pm
Where: 10 West
Childrens
Hospital at OU Medical Center,
Facilitators: Alisia Davis, MSW (405)
271-8001 / Sharelle Hushbeck, MSW / Ralisha Johnson, MSW
Spanish-Speaking Support
Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 1st Tuesday of
every month, 6:00 pm
Where:
Facilitator: Maria Aymat (405) 636-7560
Spanish-Speaking Support
Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 1st Wednesday of
every month, 5:00 pm
Where:
OU
Facilitator:
Carmen Soriano, RN (405) 271-79304
National Brain Tumor Foundation
Comprehensive site offers Information about brain
tumors, treatment information, survivor stories, support groups, and
publications. Resources also available
in Espaņol.
Phone: 1-800-934-2873
OKBTF is dedicated to meeting the needs of Oklahoma
families, caregivers and patients affected by primary brain or central nervous
system tumors. We work to provide for needs through education, advocacy,
research and service. Whatever your
needs, whether financial, physical, mental or spiritual, we will work with you
to fight the battle.
Address:
Phone: (405) 843-HOPE (4673)
E-mail: okbtf@okbtf.org
American Brain Tumor Association
Offers free publications, educational programs, social
service consultations by telephone, a mentorship program, support group lists,
a resource list of physicians, a pen pal program and funds research. Also has a special website for kids.
Address:
Phone: 1-800-866-2282
E-mail: info@abta.org
The Brain Tumor Society
Provides individualized patient/family information,
publishes educational materials, sponsors professional and patient conferences,
and funds research. Website offers offer
the latest information for the entire brain tumor community, from newly diagnosed
patients, to survivors, families and healthcare professionals.
Phone: 1-800-770-8287
E-mail: info@tbts.org
The Guardian Brain Foundation
The mission of The Guardian Brain Foundation is to help
advance neuroscience research, provide support services and to improve quality
of life for adults and children diagnosed with injuries and tumors of the
brain.
(516) 679-5075
E-mail: info@guardianbrain.com
Tulsa Strong Mind, Strong
Body, Strong Spirit Support group
For brain tumor patients and caregivers.
When: 4th
Thursday of every month, 6:00-7:00 pm
Where: Various
locations in
Information: (405) 843-4673
Please
confirm location and RSVP your attendance by the Wednesday before
Oklahoma City Strong Mind,
Strong Body, Strong Spirit Support group
For brain tumor patients and caregivers.
When: 2nd
Thursday of every month, 6:00-7:00 pm
Where: Various
locations in
Information: (405) 843-4673
Please
confirm location and RSVP your attendance by the Wednesday before
International Association of Laryngectomees (IAL)
An association of over 230 laryngectomee clubs. Clubs
provide pre- and post-operation visits to laryngee cancer patients and
continuing support education for laryngectomees and families.
Phone: Toll-free 1-866-425-3678
(1-866-IAL-FORU)
E-mail:
IAL@larynxlink.com
Web Whispers
Provides practical and educational information and
support by way of the Internet to laryngectomees and to all persons diagnosed
with or treated for cancer that affects the larynx or those who have suffered
damage to the vocal cords. Support is directed toward creating understanding,
providing educational opportunities and rehabilitation assistance.
Address: Terry Duga /
E-mail:
listmgr@webwhispers.org (E-mail list manager)
Mouth Cancer Foundation
http://www.mouthcancerfoundation.org
Aims to help patients and health professionals find
free information on mouth, head & neck cancers easily. It provides direct
links to the relevant sections of existing cancer websites and includes patient
stories as well as an active message board, which acts as an easily accessible
online support group.
E-mail: info@mouthcancerfoundation.org
Support for People with Oral and Head and Neck Cancers,
Inc. (SPOHNC)
Offers a program of support and information addressing
the emotional, psychological and humanistic needs of oral and head and neck
cancer patients.
Phone: 1-800-377-0928
E-mail: info@spohnc.org
Sooner Nu-Voice
Laryngectomee Club
When: 2:00 PM
2nd Sunday of each month
Where:
6430
N. Portland /
(Use
the far south entrance with the green awning.)
Information: Julie Bornhorn, President,405-834-9321,
soonernuvoice1@cox.net
Ann
Miller, 405-282-4740 / Tracy Grammer,
SLP, OUHSC 405-271-7559
SPOHNC - Support for People with Oral, Head & Neck Cancer
This group is patient-directed. For patients with challenges when confronted
with head, throat, nose and neck cancer. Only 4 to 5 per cent of all diagnosed
cancers are oral, head and neck, but the problems associated with these cancers
present unique challenges.
When: 6:30 - 8:30 p.m.,
First Tuesday of each month
Where: Hardesty Public
Library,
Information: Christine
Griffin, a registered nurse (retired) at (918) 271-2483
or write:
SPOHNC of
New Voice Club - Head & Neck
Support, information and education for laryngectomy, and head and neck
cancer patients with communication problems, and their families.
When: 11:30 a.m. to
1:00 p.m. - 2nd Thursday each month
Where:
Information: (918) 744-0123
or www.stjohncancercenter.com
Facilitator: Barbara King (918)
543-3833
Head & Neck Cancers - Support & Education
When: 1st Wednesday of
each month, 6:00-7:30 p.m.
Where:
Information: Brad Quillen (405) 842-3222
Melanoma International Foundation
The mission of the Melanoma International Foundation is
to ease the burden and bring hope to the journey of melanoma through patient
support, early detection education and advocacy. We provide hope and guidance
to melanoma patients and families by empowering them with correct up-to-date
information.
Phone: Toll-Free
1-866-463-6663 or 610-942-3432
E-mail: info@melanomaintl.org
The Skin Cancer Foundation
Provide accurate, up-to-date, and
essential information on all forms of skin cancer, sun protection strategies,
skin cancer prevention, and self-examination.
Phone: 1-800-SKIN-490
(800-754-6490)
E-mail: info@skincancer.org
ThyCa: Thyroid Cancer Survivors
Association, Inc.
A network of services that
link thyroid cancer survivors and health care professionals around the world..
Toll-Free:
1-877-588-7904
E-mail:
thyca@thyca.org
ThyCa OKC
The only support group in
When: 1st Monday of the
month, 5:30-7pm
Where: Mercy Cancer Resource Ctr /
Information: (405) 752-3388
About Liver Tumors
http://www.aboutlivertumors.com
A resource for liver patients and concerned persons
that includes FAQ's, definitions, as well as a portal to contact physicians and
support groups.
Phone: (502) 629-3380
E-mail: info@AboutLiverTumors.com
American Liver Foundation
http://www.liverfoundation.org
Support and referrals for people with liver cancer and
liver diseases.
Phone: 1-800-GO-LIVER
E-mail: info@liverfoundation.org
American institute for Cancer Research
A cancer charity that fosters research on
diet and cancer prevention and educates the public about the results. Information to help make better informed
decisions and reduce risk of secondary tumors and recurrence.
Phone: 1-800-843-8114 (Free nutrition hotline, talk to a registered AICR dietitian)
Cancer Information: Nutrition
http://www.caring4cancer.com/go/cancer/nutrition
Good nutrition can be your ally in the fight against
cancer, helping to manage symptoms and aid healing and recovery. Through the
links in the column to the right, find practical advice on nutrition before,
during, and after treatment, including guidance on what to eat (and when), easy
recipes, and useful tips.
The National Center for Complementary and Alternative
Medicine is the Federal Government's lead agency for scientific research on
complementary and alternative medicine (
Memorial Sloan-Kettering: Herbs & Botanicals
http://www.mskcc.org/mskcc/html/11570.cfm
An information resource presented by Memorial
Sloan-Kettering Integrative Medicine Service.
Provides evidence-based information about herbs, botanicals,
supplements, and more.
Nutrition - Battling Cancer with Better Nutrition
Information on cancer prevention with nutrition and coping techniques for
treatment side effects.
When: 1st Tuesday of
month (every other month), 12:00 pm
Where:
Information:
Nutrition and Cancer Class
A class focusing on the use of food and nutrients to improve outcome in
cancer treatment. Family and friends welcome.
When: 11:00 a.m. each
Thursday
Where: Cancer Treatment
Centers of
Information: (918)
286-5585
Mind/Body medicine
Different topics each week pertaining to stress management, dealing with
depression, overcoming anxiety, fighting fatigue, mind/body skills, etc.
When: 1:00 p.m. each
Monday
Where: Cancer Treatment
Centers of America - Conference Room A - 10109 E. 79th Street (81st Street
& Highway 169 ) Tulsa, Oklahoma 74133
Information: (918)
286-5585
Relaxation and Imagery
Relaxation, a state of reduced tension and increased mental energy, is
useful imagery to enhance healing.
When: 1:00 p.m. each
Wednesday
Where: Cancer Treatment
Centers of America - Conference Room A - 10109 E. 79th Street (81st Street
& Highway 169) Tulsa, Oklahoma 74133
Information: (918)
286-5585
Labyrinth Gathering
Walk the labyrinth and feel the stress melt away with
this group!
When: Wednesdays, 2-3pm (Call to
register)
Where: Mercy Cancer Resource Ctr /
Information: (405) 752-3388
Relaxation Relief
Learn how to cope with stress with mind and breathing
techniques
When: Thursdays, 2-3pm (Call to
register)
Where:
Information: (405) 752-3388
Humor Therapy
Good things happen to us physically, mentally, and emotionally when we
laugh. Humor is a choice, and laughter is used for its healing benefits in this
class.
When: 1:00 p.m. each
Friday
Where: Cancer Treatment
Centers of
Information: (918)
286-5585
Dare to Care Fitness & Yoga
Did you know that you can have a BLAST while Exercising? Fitness & Yoga
(for anyone affected by Cancer; classes are Coed). Offered to you FREE by
When: See below (Mon,
Tues, Wed & Thurs)
Mondays: 6:45 pm, Studio 2 Fitness / Tuesdays: 5:45 pm, Studio 3,
Yoga
Wednesdays: 10:30 am, Studio1, Fitness / Thursdays: 9:00 am,
Studio 2, Yoga
Where:
Information: Sign up
with Pat Lynn Moses or Andi Barry at (405) 949-3775
Fresh Start
Free smoking cessation
classes. Reservations are required.
When: Four weekly sessions on Tuesdays, 6-7 pm
Where: Locations alternate between
Information: (405) 951-2277
Smoke Stoppers
Ongoing smoking cessation group program.
When: Call for date and
time
Where: St Francis
Hospital Education Center, 6161 S Yale
Information: (918)
494-4400
Cancer
Journaling Group
Newcomers are
always welcome. Topics vary each month.
When: 1st Saturday of
month, 9:30-11:30 am
Where:
Information: (405) 943-4673
Expressive Arts Whole Family
Group
An
art therapy group for individuals & families affected by cancer.
When: Call for schedule
Where:
Information: Kelley ONeal (405) 231-3002
Stitching For Sanity
For beginners & experienced
at knitting and crochet. Bring scrap
yarns, patterns to exchange, or just bring yourself!
When: 1st and 3rd
Monday of the month, 2:30-2:30pm (call to verify)
Where:
Information: Pat Lynn Moses or Andi
Wings of Hope
Practice the ancient art of
origami and add folded, paper butterflies
When: 1st and 3rd
Monday of the month, 12:30-2:30pm (call to verify)
Where:
Information: Pat Lynn Moses or Andi
Monthly Creative Experience Workshop
For anyone affected by cancer, including caregivers. No art talent needed to
attend; only desire to play creatively.
When: 2:00-4:00 pm, 2nd
Thursday each month
Where:
Information: Register at (405) 943-HOPE (4673)
Expressive Writing
Learn how to use writing to combat stressful times.
When: Mondays, 2-3pm (Call to
register)
Where: Mercy Cancer Resource Ctr /
Information: (405) 752-3388
Musical Discoveries
Learn how to use music to combat stressful times.
When: Tuesdays, 2-3pm (Call to
register)
Where: Mercy Cancer Resource Ctr /
Information: (405) 752-3388
This resource guide was developed by People Connected
By Cancer
Last update: Monday, March 24, 2008
For any updates, corrections, or suggestions,
please e-mail: guide@okpcbc.org
or call: 405-962-9012