Oklahoma Cancer

Resource Guide


 

A comprehensive directory of national, statewide & local resources for cancer patients and their loved ones

 

When I was diagnosed with breast cancer at only 32, it was the furthest thing from my mind!  Unbelievably, I didn’t even know anyone first hand with cancer and no one in my family had experienced it either.  Then suddenly people were coming out of the woodwork with their experiences and advice - some good, some bad. 

 

I was one of the many patients, family members and concerned friends that set out searching on the internet for information upon hearing a cancer diagnosis.  Sometimes what we find out there is disheartening, outdated, or plain incorrect. How do we filter through all that in the middle of dealing with the diagnosis itself?  What resources are available before, during and after treatment?  What is out there to support families and caregivers?

 

As a coalition of Oklahoma health care professionals, cancer-related societies and organizations, survivors, and others whose lives have been touched by cancer, People Connected By Cancer wants to give you and your loved ones a head start by providing good, reputable resources to include web links and hotline numbers.  This booklet has been developed with support from the Oklahoma Comprehensive Cancer Control Network in conjunction with inputs from medical professionals and support groups all over the state.   

 

We will be continually updating this guide, so visit the People Connected By Cancer links page at www.okpcbc.org  for the most current version and more weblinks.

 

We wish you the best on your cancer journey, and hope this guide provides a little bit of comfort as you connect with the resources and support available in our great state of Oklahoma.

 

 

Sandi Troup

Breast Cancer Survivor & Support Group Chair

People Connected By Cancer

 


 

 

 

Table of Contents

 

Patient Advocacy and Financial Aid. 2

Resources for all Cancers. 4

Support Groups for all Cancers. 7

Family & Caregiver Resources. 13

Family & Caregiver Support Groups. 14

Palliative Care and End of Life Resources & Support 14

Bereavement and Grief Support 15

Pediatric Cancer Resources. 16

Pediatric Cancer Support Groups. 16

Young Adult Cancer Resources. 17

Young Adult Support Groups. 18

En Español - Resources in Spanish. 19

En Español - Hispanic Support Groups. 20

American Indian Cancer Resources. 21

American Indian Cancer Support Groups. 21

Breast Cancer Resources. 22

Breast Cancer Support Groups. 25

Lung Cancer Resources. 27

Lung Cancer Support Groups. 28

Colorectal Cancer Resources. 29

Colorectal Cancer Support Groups. 30

Gynecological Cancer Resources. 31

Gynecological Cancer Support Groups. 33

Prostate and Testicular Cancer Resources. 34

Prostate and Testicular Cancer Support Groups. 35

Pancreatic Cancer Resources. 36

Pancreatic Cancer Support Groups. 36

Blood Cancer Resources. 37

Blood Cancer Support Groups. 38

Brain and CNS Cancer Resources. 40

Brain and CNS Cancer Support Groups. 41

Head & Neck Cancer Resources. 42

Head & Neck Cancer Support Groups. 43

Skin Cancer Resources & Support 44

Thyroid Cancer Resources & Support 44

Liver Cancer Resources. 44

Nutrition and Complementary Medicine Resources. 45

Nutrition and Complementary Medicine Groups. 45

Fitness and Wellness. 46

Smoking Cessation. 47

Expressive Arts. 48

 


 

Patient Advocacy and Financial Aid

 

Patient Advocate Foundation

http://www.patientadvocate.org

A national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

Address:                700 Thimble Shoals Blvd, Suite 200 / Newport News, VA 23606
Phone: 1-800-532-5274

E-mail: help@patientadvocate.org

 

NCI: Financial Assistance and Other Resources for People with Cancer

http://www.cancer.gov/cancertopics/factsheet/Support/financial-resources

Comprehensive list of financial support available from government and non-profit organizations.

 

National Coalition for Cancer Survivorship

http://www.canceradvocacy.org/resources

Addresses health insurance issues, employment rights and financial help

Phone: 1-877-NCCS-YES (1-800-622-7937)

 

CancerCare Assist

http://www.cancercare.org/get_help/assistance/cc_financial.php

Limited grants for certain expenses related to treatment.

Phone: 1-800-813-HOPE (4673)

Website address or e-mail

 

United Way

http://www.unitedwayokc.org

Information on local and national assistance available.

Phone: For most areas in Oklahoma, dial 2-1-1

 

National Children’s Cancer Society

http://nationalchildrenscancersociety.com/we_help/program.html
P
rovides direct financial assistance for medical and non-medical expenses related to treatment for children with cancer, including: bone marrow transplantation, cancer treatments, meals during treatment, health insurance premiums, lodging, pharmaceuticals and transportation.

Phone: 1-800-5-FAMILY

National Patient Travel Center
www.PatientTravel.org
Based on a patient’s needs and condition, the center provides referrals to free or specially discounted medical air transport services.

Phone: 1-800-296-1217

 


 

Patient Advocacy and Financial Aid (Cont)

 

Hill-Burton Free and Reduced-Cost Health Care Program

http://www.hrsa.gov/osp
Information about how to access facilities that provide free and reduced-cost services.

Phone: 1-800-638-0742

 

Partnership for Prescription Assistance

https://www.pparx.org

The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that’s right for them.

Phone: 1-888-4PPA-NOW (477-2669)

 

Rx Assist

http://www.rxassist.org

RxAssist offers a comprehensive database of these patient assistance programs run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine.  Also provides practical tools, news, and articles so that health care professionals and patients can find the information they need.

Address: Volunteers in Health Care

111 Brewster Street / Pawtucket, RI 02860

Phone: 401-729-3284
Email: info@rxassist.org

 


 

Resources for all Cancers

 

National Cancer Institute

http://www.cancer.gov

Cancer-specific information, cancer topics like support and resources, clinical trials, etc.

Address: NCI Public Inquiries Office
6116 Executive Boulevard / Room 3036A / Bethesda, MD 20892-8322

Phone: 1-800-4-CANCER (1-800-422-6237) Monday through Friday 9:00 a.m. to 4:30 p.m.

 

American Cancer Society

http://www.cancer.org

Links to cancer-specific information, treatment decision tools, info for survivors and family

Phone: 1-800-ACS(227)-2345 (1-866-228-4327 for TTY) 24 hours a day

 

National Comprehensive Cancer Network (NCCN)

http://www.nccn.org/patients/default.asp

The National Comprehensive Cancer Network (NCCN) is a not-for-profit alliance of 21 of the world’s leading cancer centers dedicated to improving the quality and effectiveness of care provided to patients with cancer. Source for treatement guidelines, clinical trials, cancer resource links.

Phone: 1-888-909-6226

 

American Society of Clinical Oncology – People Living With Cancer

http://www.plwc.org/portal/site/PLWC

Comprehensive guides to 120+ types of cancer and cancer-related symptoms, survivorship, clinical trials, diagnosis and treatment, coping.

Address: American Society of Clinical Oncology

1900 Duke Street, Suite 200

Alexandria, VA 22314

Attn: Communications and Patient Information Department

Phone: 703-519-2927 or 888-651-3038

 

CancerCare

http://www.cancercare.org

A national nonprofit organization that provides free, professional support services for anyone affected by cancer. Includes education, counseling and assistance.

Address: CancerCare National Office

275 Seventh Ave, Floor 22 / New York, NY 10001

Phone: 1-800-813-HOPE (4673)
Email: info@cancercare.org

 


 

Resources for all Cancers (Continued)

 

LIVESTRONG – Lance Armstrong Foundation

http://www.livestrong.org

Will help you understand what to expect, teach you what questions to ask and give you one-on-one support along the way for survivors, caregivers, family members or friends.  Source for LIVESTRONG notebook and other resources.

Phone: 1-866-467-7205

 

Oncolink

http://www.oncolink.com/oncolife 

Information on nutrition, side effects, fertility; develop a comprehensive survivor care plan

 

Cancer Survivor Toolbox

http://www.cancersurvivaltoolbox.org

Cancer resources and links, plus an audio program designed to help cancer survivors and caregivers develop practical skills to deal with the diagnosis, treatment and challenges of cancer.  (Access online, or call to order a free CD)

Address: National Coalition for Cancer Survivorship

1010 Wayne Avenue, Suite 770

Silver Spring, MD 20910

Phone: 1.877.TOOLS.4U (1-800-866-5648)

 

National Coalition for Cancer Survivorship – Resource Guide

http://www.canceradvocacy.org/resources/guide

A super resource!  Use drop down menus to search for organizations and resources based on cancer type, cancer-related information, and essential care. 

 

CancerConsultants.com – Oncology Resource Center

http://www.patient.cancerconsultants.com

Provides interested individuals, cancer patients, and their families and caregivers with access to the most current information about the prevention, screening, treatment, and overall management of cancer.

 

American Psychosocial Oncology Society – Helpline

http://www.apos-society.org/survivors/helpline/helpline.aspx

A toll-free Helpline through which cancer patients, caregivers and advocacy organizations may obtain referrals for local counseling services throughout the United States  to connect cancer patients and their caregivers to professionals skilled in the management of cancer-related distress.

Phone: Toll Free 1-866-276-7443 (1-866-APOS-4-HELP)

E-mail: sspencer@apos-society.org (Please put “Helpline Inquiry” in subject line)

 

CancerQuest

http://www.cancerquest.org

This educational website teaches the biology of cancer. It assumes no previous knowledge on the topic, but goes into a fair amount of detail with 3-D graphics and audio.  Site also has a Spanish option.

 

 

Resources for all Cancers (Continued)

 

Oncology Nursing Society - Cancer Symptoms.org

http://www.cancersymptoms.org

Information to learn about and manage symptoms that patients undergoing treatment for a cancer diagnoses commonly experience: anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction.

 

Cancer-Pain.org

http://cancer-pain.org

This Association of Cancer Oncology Resources site contains information about cancer pain, its causes and available treatments.

 

Cancer Hope Network

http://www.cancerhopenetwork.org

Free, confidential, one-on-one support to people with cancer and their families; match patients with trained volunteers who have themselves undergone a similar experience. Provides support and hope, to help patients and families look beyond the diagnosis, cope with treatment, and start living life to its fullest once again.

Address:                2 North Road - Suite A / Chester, NJ 07930

Phone: Toll Free 1-877-467-3638

 

Cancer and Careers.org

http://www.cancerandcareers.org

A great resource for working women with cancer.  Also has educational seminar materials, resources and tips for employers & coworkers, and suggestions on professional appearance while going through chemotherapy.

 

Gilda’s Club

http://www.gildasclub.org

Cancer support for the whole family, the whole time.  Mission is to provide meeting places where men, women and children living with cancer, along with their families and friends, can join with others to build a personal network of social and emotional support as an integral part of cancer treatment.  Very extensive online resource section for cancers.

Address: Gilda's Club Worldwide / 322 Eighth Avenue, Suite 1402 / New York, NY 10001

Phone: 1-888-GILDA-4-U

 

Caring 4 Cancer

http://www.caring4cancer.com

Comprehensive cancer information through the entire journey, survivor stories, online message boards, support groups  Also create a Caring Connections page to keep an online journal and share with others.

Support Groups for all Cancers

 

Understanding Cancer

Answers to many questions about the nature, causes, diagnosis, treatment, and prevention of cancer.
When: 2:00 p.m. each Tuesday
Where: Cancer Treatment Centers of America - Conference Room A - 10109 E. 79th Street (81st Street & Highway 169) Tulsa
Information: (918) 286-5585

 

St. Francis Educating/Support Group
Support for St. Francis Hospital Radiation Oncology patients and family members

When: 11:30 a.m. each Thursday
Where: St. Francis Hospital, Radiation Therapy Lobby / 6161 S. Yale / Tulsa, OK
Information: Jolene Sanditen (918) 494-1585

 

Recurrence (Second Diagnosis)
When: 6:00-7:30 pm, First Monday each Month
Where: Y-ME office, 4606 E. St -- Building 7, Suite 314
Information: Y-ME (918) 481-3482

 

Reach to Recovery
Volunteer Program one-on-one Call for more information
Information: American Cancer Society (405) 782-1106

 

Radiation - What You Need to Know
What you need to know about radiation
When: 11:00 a.m. each Wednesday
Where: Cancer Treatment Centers of America - Conference Room A - 10109 E. 79th Street (81st Street & Highway 169) Tulsa
Information: 1-918 286-5585

 

Look Good... Feel Better
Licensed volunteer cosmetologists demonstrate techniques for enhancing appearance while undergoing cancer treatment with tips on wigs, turbans, makeup, skin care, etc.
When: 6:30 p.m. - 1st Tuesday each month except December
Where: Mary Kay Chapman Health Plaza, 1819 E. 19th / Tulsa, OK
Information: American Cancer Society, (918) 743-6767

 

Chemo Class
An informal class explaining the action of various chemotherapy drugs, possible side effects, and symptom management. Learn what you can do to manage and improve your experiences before, during, and after receiving chemotherapy, and the action of various chemotherapy drugs; and possible side effects.
When: 2:00 p.m. each Thursday
Where: Cancer Treatment Centers of America - Conference Room A - 10109 E. 79th Street (81st Street & Highway 169) Tulsa
Information: (918) 286-5585


 

Support Groups for all Cancers (Cont)

 

Thursday’s Friends

Support group for cancer survivors and their families.

When:  Call for schedule.

Where:                  Midwest Regional Medical Ctr / 2825 Parklawn Drive / Midwest City, OK 73110

Information:  (405) 610-3627

 

Safe Haven Support Group

General cancer support group.

When:  Call for schedule.

Where:  St. Anthony Hospital / 100 N. Lee Oklahoma City, OK 73101

Information:  Kelley O’Neal (405) 231-3002

 

Cancer Support Group

When:  3rd Tuesday of month, 7:00 P.M.

Where:                  Norman Regional Hospital Education Ctr /