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A comprehensive directory of national, statewide & local
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A comprehensive directory of national, statewide & local
resources for cancer patients and their loved ones |
When I was diagnosed with breast cancer at only 32, it was the furthest thing
from my mind! Unbelievably, I didn’t even know anyone first hand with cancer
and no one in my family had experienced it either. Then suddenly people were
coming out of the woodwork with their experiences and advice - some good, some
bad.
I was one of the many patients, family members and concerned friends that
set out searching on the internet for information upon hearing a cancer diagnosis.
Sometimes what we find out there is disheartening, outdated, or plain incorrect.
How do we filter through all that in the middle of dealing with the diagnosis
itself? What resources are available before, during and after treatment?
What is out there to support families and caregivers?
As a coalition of Oklahoma health care professionals, cancer-related societies
and organizations, survivors, and others whose lives have been touched by cancer,
People Connected By Cancer wants to give you and your loved ones a head start
by providing good, reputable resources to include web links and hotline numbers.
This booklet has been developed with support from the Oklahoma Comprehensive
Cancer Control Network in conjunction with inputs from medical professionals
and support groups all over the state.
We will be continually updating this guide, so visit the People Connected
By Cancer links page at www.okpcbc.org for the most current version and more
web links.
We wish you the best on your cancer journey, and hope this guide provides
a little bit of comfort as you connect with the resources and support available
in our great state of Oklahoma.
Sandi Troup
Breast Cancer Survivor & Resource Guide Coordinator
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Table of
Contents |
Patient Advocacy and Financial
Aid.
Support Groups for all Cancers.
Family & Caregiver Support Groups.
Palliative Care and End of Life Resources & Support
Pediatric Cancer Support Groups.
En Español - Resources in Spanish.
En Español - Hispanic Support Groups.
American Indian Cancer Resources.
American Indian Cancer Support Groups.
Colorectal Cancer Support Groups.
Gynecological Cancer Resources.
Gynecological Cancer Support Groups.
Prostate and Testicular Cancer Resources.
Prostate and Testicular Cancer Support Groups.
Pancreatic Cancer Support Groups.
Brain and CNS Cancer Resources.
Brain and CNS Cancer Support Groups.
Head & Neck Cancer Support Groups.
Skin Cancer Resources & Support
Thyroid Cancer Resources & Support
Nutrition and Complementary Medicine Resources.
Nutrition and Complementary Medicine Groups.
Patient Advocate Foundation
http://www.patientadvocate.org
A national non-profit organization that seeks to safeguard
patients through effective mediation assuring access to care, maintenance
of employment and preservation of their financial stability.
Address: 700
Thimble
Phone: 1-800-532-5274 E-mail: help@patientadvocate.org
NCI: Financial Assistance and Other
Resources for People with Cancer
http://www.cancer.gov/cancertopics/factsheet/Support/financial-resources
Comprehensive list of financial support available from
government and non-profit organizations.
National Coalition for Cancer Survivorship
http://www.canceradvocacy.org/resources
Addresses health insurance issues, employment rights and
financial help
Phone: 1-877-NCCS-YES (1-800-622-7937)
CancerCare Assist
http://www.cancercare.org/get_help/assistance/cc_financial.php
Limited grants for certain expenses related to treatment.
Phone: 1-800-813-HOPE (4673)
United Way
Information on local and national assistance available.
Phone: For most areas in
National Children’s Cancer
Society
http://nationalchildrenscancersociety.com/we_help/program.html
Provides direct
financial assistance for medical and non-medical expenses related to treatment
for children with cancer, including: bone marrow transplantation, cancer
treatments, meals during treatment, health insurance premiums, lodging, pharmaceuticals
and transportation.
Phone: 1-800-5-FAMILY
National Patient Travel
Center
www.PatientTravel.org
Based on a patient’s
needs and condition, the center provides referrals to free or specially discounted
medical air transport services.
Phone: 1-800-296-1217
Angel Flight of Oklahoma
www.angelflight.com
A non-profit,
all-volunteer, Oklahoma-based organization that provides free air transportation
services for patients receiving treatment at centers in Oklahoma, Texas, and
nearby states.
Phone: 918-749-8992
Fax:
Email: angel@angelflight.com
Air Charity Network
www.aircharityntetwork.org
Provides access for people
in need seeking free air transportation to specialized health care facilities
or distant destinations due to crisis.
Phone: 1-877-621-7177
Corporate Angel Network
Arrange free air transportation for cancer patients traveling
to treatment using the empty seats on corporate jets.
Phone: 1-866-328-1313
Hope Rains
The Jeannette Holmes Memorial Foundation
has been established to help young women in
Joint
A partnership of numerous
Hill-Burton Free and Reduced-Cost
Health Care Program
http://www.hrsa.gov/osp
Information about how to access facilities
that provide free and reduced-cost services.
Phone: 1-800-638-0742
Partnership for Prescription Assistance
Brings together America’s pharmaceutical companies, doctors,
other health care providers, patient advocacy organizations and community
groups to help qualifying patients who lack prescription coverage get
the medicines they need through the public or private program that’s
right for them.
Phone: 1-888-4PPA-NOW (477-2669)
Rx Assist
RxAssist offers a comprehensive
database of these patient assistance programs run by pharmaceutical companies
to provide free medications to people who cannot afford to buy their
medicine. Also provides
practical tools, news, and articles so that health care professionals
and patients can find the information they need.
Address: Volunteers in Health
Care,
Phone: 401-729-3284 Email: info@rxassist.org
Needy Meds
Information on medicine and healthcare assistance programs.
National Cancer Institute
Cancer-specific information, cancer topics like support
and resources, clinical trials, etc.
Address: NCI Public Inquiries Office
Phone: 1-800-4-CANCER (1-800-422-6237) Monday
through Friday 9:00 a.m. to 4:30 p.m.
American Cancer Society
Links to cancer-specific information, treatment decision
tools, info for survivors and family
Phone: 1-800-ACS(227)-2345 (1-866-228-4327 for TTY) 24
hours a day
National Comprehensive Cancer Network (NCCN)
http://www.nccn.org/patients/default.asp
The National Comprehensive Cancer Network (NCCN) is a
not-for-profit alliance of 21 of the world’s leading cancer centers dedicated
to improving the quality and effectiveness of care provided to patients
with cancer. Source for treatement guidelines, clinical trials, cancer
resource links.
Phone: 1-888-909-6226
American Society of Clinical Oncology – Cancer.net
(Formerly People Living With Cancer)
Comprehensive guides to 120+ types of cancer and cancer-related
symptoms, survivorship, clinical trials, diagnosis and treatment, coping.
Address: American Society of
Clinical Oncology
Attn:
Communications and Patient Information Department
Phone: 1-888-651-3038
Email: cancernet@asco.org
CancerCare
A national nonprofit organization that provides free,
professional support services for anyone affected by cancer. Includes
education, counseling and assistance.
Address: CancerCare National
Office, 275
Phone: 1-800-813-HOPE (4673)
Email: info@cancercare.org
Will help you understand what to expect, teach you what
questions to ask and give you one-on-one support along the way for survivors,
caregivers, family members or friends. Source
for LIVESTRONG notebook and
other resources.
Phone: 1-866-467-7205
Oncolink
http://www.oncolink.com/oncolife
Information on nutrition, side effects, fertility; develop
a comprehensive survivor care plan
Cancer Survivor Toolbox
http://www.cancersurvivaltoolbox.org
Cancer resources and links, plus an audio program designed
to help cancer survivors and caregivers develop practical skills
to deal with the diagnosis, treatment and challenges of cancer. (Access online, or call to order a free
CD)
Address: National Coalition
for Cancer Survivorship
Phone: 1-877-TOOLS-4U (1-800-866-5648)
National Coalition for Cancer Survivorship – Resource
Guide
http://www.canceradvocacy.org/resources/guide
A super resource! Use
drop down menus to search for organizations and resources based on cancer
type, cancer-related information, and essential care.
CancerConsultants.com –
http://www.patient.cancerconsultants.com
Provides interested individuals, cancer patients, and
their families and caregivers with access to the most current information
about the prevention, screening, treatment, and overall management of
cancer.
American Psychosocial Oncology Society – Helpline
http://www.apos-society.org/survivors/helpline/helpline.aspx
A toll-free Helpline through which cancer patients, caregivers
and advocacy organizations may obtain referrals for local counseling
services throughout the United States to connect cancer patients and their caregivers
to professionals skilled in the management of cancer-related distress.
Phone: Toll Free 1-866-276-7443 (1-866-APOS-4-HELP)
E-mail: sspencer@apos-society.org (Please
put “Helpline Inquiry” in subject line)
CancerQuest
This educational website teaches the biology of cancer.
It assumes no previous knowledge on the topic, but goes into a fair amount
of detail with 3-D graphics and audio. Site
also has a Spanish option.
Information to learn about and manage symptoms that patients
undergoing treatment for a cancer diagnoses commonly experience: anorexia,
cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances,
neutropenia, pain, peripheral neuropathy, and sexual dysfunction.
Cancer-Pain.org
This Association of Cancer Oncology Resources site contains
information about cancer pain, its causes and available treatments.
Cancer Hope Network
http://www.cancerhopenetwork.org
Free, confidential, one-on-one support to people with
cancer and their families; match patients with trained volunteers who
have themselves undergone a similar experience. Provides support and
hope, to help patients and families look beyond the diagnosis, cope with
treatment, and start living life to its fullest once again.
Address:
Phone: Toll Free 1-877-467-3638
Cancer and Careers.org
http://www.cancerandcareers.org
A great resource for working women with cancer. Also has educational seminar materials,
resources and tips for employers & coworkers, and suggestions on
professional appearance while going through chemotherapy.
Gilda’s Club
Cancer support for the whole family, the whole time. Mission is to provide meeting places
where men, women and children living with cancer, along with their families
and friends, can join with others to build a personal network of social
and emotional support as an integral part of cancer treatment. Very extensive online resource section
for cancers.
Address: Gilda's Club Worldwide,
Phone: 1-888-GILDA-4-U
Caring 4 Cancer
Comprehensive cancer information through the entire journey,
survivor stories, online message boards, support groups Also create a Caring Connections page
to keep an online journal and share with others.
Understanding
Cancer
Answers to
many questions about the nature, causes, diagnosis, treatment, and prevention
of cancer.
When: 2:00 p.m.
each Tuesday
Where: Cancer Treatment
Centers of
Information: (918) 286-5585
St. Francis
Educating/Support Group
Support for St. Francis Hospital Radiation Oncology patients and family
members
When: 11:30 a.m.
each Thursday
Where:
Information: Jolene Sanditen (918)
494-1585
Recurrence
(Second Diagnosis)
When: 6:00-7:30
pm, First Monday each Month
Where: Y-ME office, 4606 E. St --
Building 7,
Information: Y-ME (918) 481-3482
Reach to Recovery
Volunteer Program one-on-one Call for more information
Information: American
Cancer Society (405) 782-1106
Radiation -
What You Need to Know
What you need to know about radiation
When: 11:00 a.m. each Wednesday
Where: Cancer Treatment
Centers of America - Conference Room A - 10109 E. 79th Street (81st Street & Highway
169) Tulsa
Information: 1-918 286-5585
Look Good...
Feel Better
Licensed volunteer cosmetologists demonstrate techniques for enhancing
appearance while undergoing cancer treatment with tips on wigs, turbans,
makeup, skin care, etc.
When: 6:30 p.m. - 1st Tuesday each
month except December
Where: Mary Kay Chapman Health Plaza,
1819 E. 19th / Tulsa, OK
Information: American Cancer Society,
(918) 743-6767
Chemo Class
An informal class explaining the action of various chemotherapy drugs,
possible side effects, and symptom management. Learn what you can do to manage
and improve your experiences before, during, and after receiving chemotherapy,
and the action of various chemotherapy drugs; and possible side effects.
When: 2:00 p.m.
each Thursday
Where: Cancer Treatment
Centers of
Information: (918) 286-5585
Thursday’s Friends
Support group for cancer
survivors and their families.
When: Call for schedule.
Where: Midwest
Regional Medical Ctr /
Information: (405) 610-3627
Cancer Support Group
A support
group designed to provide a confidential and safe atmosphere where patients,
survivors, and their families and friends can talk about the challenges
cancer creates. Provides the resources needed to learn about the disease
in order to gain the skills needed to fight cancer and cope with the
changes it creates for everyone it touches.
When: Contact Ms. Haley for dates/times
Where:
Information: Cecyle Haley,
Cancer Program Coordinator, (405) 307-1705
PUSH Positively Uniting Survivors through Hope
A monthly support and resource
group open to all survivors and caregivers, of any type of cancer.
When: 2nd Monday of month, 6:00-8:00
pm.
Where:
Information:
Cancer Support Group
When: Tuesdays, 6:30 pm.
Where: Grady
Information: Allison
Kopycinski (405) 779-2163, Maggie Griffith (405) 222-2551
I Can Cope
The American Cancer Society's "I
Can Cope" is a series of education classes for cancer survivors. Each
class covers a different subject that relates to survivorship. Topics
include learning about cancer, nutrition during cancer treatment, managing
side-effects of cancer and its treatments, and self esteem and intimacy.
When: Quarterly on Thursdays,
6:00-7:30 pm call for dates and to RSVP
Where:
Information:
New Days Cancer Support Group
New Days is a cancer support
group that formed in May 2003. It
is for persons who are in treatment or remission. We also seek to reach out to friends
and families who have watched or are watching a loved one battle cancer. The time together is used to answer questions,
discuss current treatments options, give support for all and allow experts
in related fields to share timely information with us.
When: 1st Monday each month, 6:30
– 7:30 pm
Where: First United
Information:
A Touch of Grace
A Christian cancer support
group for women.
When: 3rd Tuesday each month, 6:30pm
Where: First Assembly of Tahlequah – Sunshine
Room,
Information: Susan Walker, (918) 0931-2017, sewforchrist@yahoo.com
Cancer Support Group
When: 2nd Friday each
month, 1:00 pm
Where:
Information: (918) 682-3496
Cancer Support
Group
When: 1st and 3rd Thursday each month, 5:00pm
Where:
Information: Martha Owens
(918) 686-0351
McAlester Cancer Support
Group
When: 3rd Thursday
each month, 1:00pm
Where: Van Buren House / 1800 Van
Buren,
Information: Joyce McNally (918) 423-8583
Mindfull Chatter
Cancer Support Serving Multiple
Counties in
When: 1st Tuesday each
month, 5:30pm
Where: Millenium’s Close to You
3305 NE Loop 286, Suite E,
Information: Toni Finch,
Cancer Support
Group
When: 3rd Thursday
each month, 2pm
Where: First United
Information: JoAnn Black (918) 865-2676
When: 3rd Thursday
each month, 6:30pm
Where:
Information: Dora Johnson
1-918 371-2242
Cancer Support
Group-
When: 2nd Tuesday of each month,
11:30am-1pm
Where:
Information: Contact Shelley Simon 1-580-762-9126
Mayes County
Support Group
When: 4th Thursday
each month, 7:00pm
Where:
Information: Darla Thompson
1-918 825-2747 or 1-918 637-6038
Mustard Seed
Support for cancer patients and family/friends
When: 11:30 a.m. - 2nd Saturday each
month
Where:
Information: Rosanna Pasco (918) 492-4953
or Betty Scrivner (918) 299-3413
Pinkey Promise
Where:
Very new group, they meet
in individual’s homes, so far includes mostly family and friends. Meetings held mid-month, nothing set
as of yet.
Information: Monica Gonzales (580) 647-7688
Woodward General Cancer Support
When: Monthly
Where:
Information: Mary Swafford (580) 256-5511
Stillwater Support Group
When: Monthly
Where: Honska Room,
Information: Barbara Bell (405) 372-1775
When: Monthly
Where:
Information: Cathy
Hennessey (580)-421-1175
Grove Cancer Support Group
When: 2nd Tuesday of the month at
7:00pm
Where:
Information: Barbara Ott (918) 786-7159 or Billie
Parker, (918) 786-6625
Oklahomans
for Independent Living
Offering support to individuals and those affected by cancer
When: 8:00 a.m.
- 5:00 p.m. weekdays
Where: 321 S. 3rd,
Information: John Wilkinson (918)
426-6220 x105
Living with
Cancer Challenge
Adult support group for patients and survivors.
When: 10:00-11:30 a.m. every Tuesday
Where: St. John
Medical Center-LaFortune
Cancer Center, Holliman Building,
lower level, 1705 E. 19th St., Tulsa,
OK 74104
Information: Call
(918) 744-0123 or www.stjohncancercenter.com
Just in Time
General cancer support group for patients & family/friends
When: 6:30 p.m.
- 3rd Thursday each month
Where:
Information: Susan Kimball 918-272-2519
or 918-272-1146
Graduate Group
Therapy support group. Self examination and assist each other. Please
call for more information to determine if this group might be helpful to
you.
When: 2nd & 4th
Tuesdays
Where:
Information: Roseanna Smith (405)
842-0003
Rosanna Smith is a licensed family therapist, a licensed professional counselor,
and a cancer survivor.
General Cancer
Support Group
When: 1:00 p.m.
3rd Thursday of each month
Where: Van Buren House (across from
McAlester Clinic),
Information: Franke Rayburn (918)
423-5081 or Mita Milligan (918) 421-8182
Christ United
Methodist Church - Cancer Support Group
Support for cancer patients & family/friends
When: Call for date and time
Where:
Information: (918) 747-8601
Cancer Support
Group
Support Group for patients, survivors, families and caregivers of cancer
patients.
When: 1:00 p.m.
- 2nd Friday each month
Where:
Information: Dr.
Linda Platt (918) 687-4871 or (918) 310-0331
Cancer Support
Group
Support group for cancer patients, their families/friends.
When: 12:00 - 1:00
- 4th Thursday each month
Where:
Information: Barbara Bale (405) 372-1775
Asbury United
Methodist Support Group
A support group for those living with cancer, their family and friends.
When: 4:00-6:00
p.m. 2nd Sunday each month (April & May - 3rd Sunday)
Where: 6767
Information: (918) 492-1771
American Cancer
Society - Mayes county Support Group
Support for those with cancer
When: 1st Thursday each month
Where:
Information: Darla Thompson 918-825-4224
Been There
Done That
Support
for stem cell recipients and cancer recurrence.
When: 6:30 - 8:30
p.m. 1st Monday of each month
Where: Just west of the Warren Clinic,
turn west on 66th street. 4606 E 67th St, Bldg 7, Suite 314, Tulsa,
OK 74136
Information: Carey Edwards, (918)
494-8808, cedwards@networkofstrength.org
Website: http://www.networkofstrength.org
Free Counseling and Support Services
Support for persons affected by cancer in
Where:
Information: (405) 943-4673
For Appointment:
Lotsa Helping Hands
http://www.caringconnections.lotsahelpinghands.com
A great online resource to distribute the burden of caregiving
among a community of volunteers. Define volunteer activities using the
supplied templates, and begin inviting members to the community. Volunteers
can then easily view and sign up for any number of available tasks, review
their current commitments, and will automatically be sent email reminders
of upcoming obligations.
Net of Care
http://www.netofcare.org/content/getting_started
Information and resources for caregivers. Site also provides a downloadable Caregiver
Resource Directory intended to help family caregivers feel less alone
and overwhelmed. It offers resources, facts, and advice about caring
for a loved one, as well as the caregiver.
National
http://www.caregiving.org
Dedicated to providing support to family
caregivers and the professionals who help them and to increasing public
awareness of issues facing family caregivers.
National Family Caregivers
Association
http://www.nfcacares.org
Educates, supports, empowers and speaks up
for the more than 50 million Americans who care for loved ones with a
chronic illness or disability or the frailties of old age.
Phone: 1-800-896-3650
Kids Konnected
Kids Konnected's mission is to provide friendship, understanding,
education, and support for the children who have a parent with cancer,
or have lost a parent to cancer. Children’s camps, books, youth leadership
program.
24-Hour Hotline for Kids to
call: 1-800-899-2866
E-mail: info@kidskonnected.org
KidsCope
Mission is to help children and families understand the
effects of cancer or chemotherapy on a loved one, to provide suggestions
for coping, and to develop innovative programs and materials that communicate
a message of hope to diverse families coping with this crisis.
Children’s Treehouse Foundation
http://www.childrenstreehousefdn.org/ourbook.html
Interactive workbook to help kids cope with news that
parents have cancer
Family Support Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 1st Wednesday
of every month, 7:00 pm
Where: St Francis Hospital,
Facilitator: Peg André, RN, OCN (918)
639-7495
Parents’ Support Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 2nd Wednesday
of the month, 12:00 pm
Where: Conference Room,
Children’s Hospital at OU
Medical Center /
Facilitator:
Grupo De Apoyo De Cancer
A
support group in Spanish - family and friends are encouraged to attend. Facilitated by a cancer survivor. Las reunions se llevaran a cabo en la
sola espera del INTEGRIS Southwest Medical Centre
When: 1st Tuesday of the month, 6:00-7:00
pm
Where: INTEGRIS SW Medical Center,4401 S.W.
44th Street, OKC, OK 73109
Information: Maria Aymat, (405) 636-7560, aymamj@integrisok.com
http://www.integris-health.com/INTEGRIS/en-US/HealthResources/HealthInfo/Espanol
Cancer Caregivers
A monthly support and resource group open to all caregivers
of cancer survivors if any type of cancer. They meet at the same time
as the PUSH group, so cancer survivors and their caregivers can come
receive the unique support you both need.
When: 2nd Monday
of the month, 6:30-8:00 pm
Where:
Information:
http://okpalliative.nursing.ouhsc.edu
A comprehensive resource for
palliative and end of life care. Numerous
local and national links are available on the Resources page.
Address: OU
Phone: (405) 271-1491, ext
49194
E-mail: ok-palliative@ouhsc.edu
Caring Connections
A wide range of resources about end-of-life care to include
hospice info, palliative care, advance directives, caregiving, pain,
grief, financial planning, and issues relating to the workplace.
Phone: 1-800-658-8898 (Spanish
helpline 1-877-658-8896)
E-mail: caringinfo@nhpco.org
National Pain Foundation – Cancer Pain and Palliative
Care
http://www.nationalpainfoundation.org/MyPain/contentdirectory_Cancer.asp
Education and resources for cancer pain for patients with
cancer.
Address:
AARP – End of Life
http://www.aarp.org/families/end_life
Educational sections for estate planning, financial powers
of attorney, hospice, communicating wishes, and resources for family
members coping with end of life issues.
New Horizons
This
is a group open to anyone experiencing grief.
When: 2nd & 4th Mondays
of the month, 7:00-8:30 pm
Where:
Information:
The Tristesse
Center
Grief counseling center for both children and adults. Children, teens,
and adult group sessions offered. Art therapy and individual counseling also
available. When:
call for times
Where: The
Information: (918) 587-1200, www.thetristessecenter.org
Grief and Life
Changes Support Group
Help in dealing with life's changes, with the loss of a friend or family,
or dealing with cancer
When: 6:15 pm to 8:15 p.m. each Wednesday
Where: Nick Reynolds
Funeral Home, 1916 S Sheridan, Tulsa (call for other locations)
Information: Lynda Alford, Vista Care
Family Hospice, (918) 622-4828
Grief and Life
Changes Support Group
Help dealing with life's changes, the loss of a friend or family, or dealing
with cancer.
When: Call for schedules
Where: Tulsa Jewish Retirement & Health
Center 2025 E 71, Zarrow Manor
(Residential
side - 2nd floor); call for other locations
Information: Lynda Alford, Vista Care
Family Hospice, (918) 622-4828
Bereavement
and Grief Services
Offering support and/or services to those who are grieving the death of
a loved one. Call to have your name added to the mailing list.
When: every Tuesday
from 5:30-7 p.m.and Thursday from 3:30-4:30 p.m.
Where:
Information: Bereavement Coordinator
(918) 747-7901
American Cancer
Society - Bereavement and Grief Services
Support and/or services to those who are grieving the death of a loved
one.
When: 7:00 p.m.
- 2nd Tuesday each month
Where:
Information: Susan Johnson (918) 825-1600
Bereavement
Support Group - Owasso
For people who have lost loved ones
When: 4:00 p.m. each Thursday
Information: Suzanne Davis or Don
McAllister (918) 747-7901
Pediatric
A web site for parents, friends, and families of children
who have or had childhood cancer. This resource center was created by
and for people who know young people who are recovering from cancer.
Candlelighters Childhood
Cancer Foundation
http://www.candlelighters.org
Committed to providing support, education and advocacy
for children and adolescents with cancer, survivors of childhood/adolescent
cancer, their families and the professionals who care for them.
Starlight StarBright Children’s Foundation
Help seriously ill children and their families cope with
their pain, fear and isolation through entertainment, education and family
activities.
Phone: 1-800-315-2580
E-mail: info@starlight.org
Parents’ Support Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 2nd Wednesday
of the month, 12:00 pm
Where: Conference Room,
Children’s Hospital at OU
Medical Center /
Facilitator:
Ulman Cancer Fund for Young Adults
Addresses areas of cancer support, advocacy, and education
specific to young adults dealing with cancer.
Address: PMB
#505 /
Phone: 1-888-393-FUND (3863)
Email: info@ulmanfund.org
I'm
Too Young For This! Cancer Foundation for Young Adults
http://imtooyoungforthis.org
A global support community for young adults affected by
cancer who get busy living and rock on. Our mission is to end isolation and
improve quality of life by providing one-stop access to hard to find resources,
peer support and social networks.
Planet Cancer
Young adults with cancer slip into a lonely no-man's land.
Too old for the instant community of a children's hospital, they still
don't fit in with the over-50 community that overwhelmingly populates
adult cancer wards. Because young adults with cancer are a relatively
small group, the difficulty of finding peer support is increased exponentially,
forcing many to deal in isolation with issues specific to this age and
stage of life: dating with cancer, disclosure to a potential employer,
long-term insurance issues, moving back home, loss of fertility, or having
to quit school or a newly-launched career. Planet Cancer exists so that
no young adult will have to endure such isolation again.
LIVESTRONG Young Adult
http://www.livestrong.org/site/c.jvKZLbMRIsG/b.865471/k.B49/Young_Adult_Alliance.htm
A coalition of organizations with the goal to improve
the survival rates and quality of life for young adults with cancer between
the ages of 15 and 40.
Young Survival Coalition
Dedicated to the concerns and issues that are unique to
young women and breast cancer. YSC also serves as a point of contact
for young women living with breast cancer.
Fertile Hope
Fertile Hope is a national, nonprofit organization dedicated
to providing reproductive information, support and hope to cancer patients
and survivors whose medical treatments present the risk of infertility. Information
on insurance coverage and financial assistance for fertility preservation
and parenthood after cancer.
SHOUT Young
Women Cancer Survivors
(Strength,
Healing, Optimism, Understanding, Together)
When: Usually
4th Thursday of month, 6:30pm (check website for events)
Where: Locations
vary, call ahead or check website
Information: Sandi
Troup: (405) 962-9012 or Molly Fritch (405) 740-7705
Website: www.shout-okc.org
Young Women's
Group
When: 6:30-8:30pm,
First Tuesday
Where: 4606 E. 67
Street - Building 7,
Information: (918) 494-8808
Instituto Nacional del Cáncer
Brindamos información para aumentar su conocimiento sobre
el cáncer y contestamos las preguntas más frecuentes; entre ellas, ¿qué es el cáncer? Nuestro enfoque es la comunidad de
habla hispana en los Estados Unidos. Usted encontrará una lista de
los mitos y creencias más comunes en la comunidad hispana o
Teléfono: 1-800-422-6237 /
(1-800-4-CANCER)
Sociedad Americana
http://www.cancer.org/docroot/ESP/ESP_0.asp
Convivir con el cáncer, PLWC
En este sitio Web puede buscar información para ayudar
a los pacientes y las familias a tomar decisiones informadas sobre el
cuidado de la salud. Toda la información en PLWC cuenta con la aprobación
de oncólogos.
http://www.plwc.org/portal/site/PLWC (select PLWC
En Español )
Teléfono: 1- 888-651-3038
NCCN
Guías de Tratamiento para
los Pacientes Versiones en Español
http://www.nccn.org/patients/patient_gls.asp
Teléfono: 1-888-909-NCCN (6226)
CancerCare
La misión de CancerCare es asegurar
de que las personas que tienen cáncer y sus seres queridos tengan el
apoyo que necesitan para sobrellevar los retos emocionales, físicos y
financieros de vivir con cáncer.
http://www.cancercare.org/espanol
Teléfono: 1-800-813-4673
La Patient Advocate Foundation
La Patient Advocate Foundation
procura defender los derechos
http://www.patientadvocate.org/index.php?p=279
Teléfono: 1-800-516-9256
ext. 1417
National Coalition for Cancer Survivorship – Resource
Guide
http://www.canceradvocacy.org/resources/guide
A comprehensive list of over 25 sites with Spanish support. Select
Spanish Resources in the Cancer-Related Information pull-down menu.
CancerConsultants.com - Centro de Recurso por Oncología
http://patient.spanish.cancerconsultants.com
Tipos de cáncer, Tratemiento del cáncer, diagnosticado
nuevamente
Breast Cancer Network of Strength
http://www.networkofstrength.org/espanol
Breast Cancer Network of Strength ofrece apoyo por medio
de "YourShoes," un centro de apoyo 24/7 contra el cáncer de mama que
se regentea por personas sobrevivientes de cáncer de mama que saben personalmente
lo que es caminar en los pasos de alguien que se enfrenta a esa enfermedad.
Comuníquese con nosotras en
Integris Health
Grupo de Apoyo de Cáncer
Las reuniones se llevan a cabo en la sala de espera del Centro de Cáncer
de INTEGRIS Southwest Medical de las 6:00 pm a las 7:00 pm. Para más información
favor llamar al Integris HealthLine (405) 951-2277 marcando # 2 para Español
When: Las reuniones
son el primer lunes del mes
Where: del Centro de Cáncer dell Integris
SW Medical
Information: María Aymat (405) 636-7560 / Email: aymamj@integrisok.com
Spanish Whole Family Support
Group
A
support group in Spanish - family and friends are encouraged to attend. Facilitated by a cancer survivor.
When: 1st Tuesday of the month, 6:00-7:00
pm
Where: INTEGRIS SW Medical Center / 4301 S.
Western, OKC, OK 73109
Information: Maria Aymat, (405) 636-7560, aymamj@integrisok.com
Website in Spanish: http://www.integris-health.com/INTEGRIS/en-US/HealthResources/HealthInfo/Espanol
Spanish-Speaking Support
Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 1st Wednesday
of every month, 5:00 pm
Where:
OU
Facilitator: Carmen Soriano, RN (405)
271-7930
National Office of Native Cancer Survivorship
Dedicated to improving the quality of cancer care and
survivor support for American Indians and
Address: Office
of Native Cancer Survivorship – ONCS
13790
Phone: 1-800-315-8848 (Toll
free Cancer Survivor help line), (907) 333-2071 for more info
E-mail: info@oncs.org
Native Cancer Information
Resource Center and Learning Exchange (C.I.R.C.L.E)
http://www.mayo.edu/nativecircle
Native C.I.R.C.L.E.
exists to stimulate, develop, maintain and disseminate culturally appropriate
cancer information materials for American Indian/Alaska Native educator,
healthcare leaders and students.
Address: Native C.I.R.C.L.E
Native American Cancer Research
Resources for survivors, caregivers and educators.
NACES Quality of Life Tree
Addresses quality of life and survivorship issues: spirituality,
communication, treatment, clinical trials, treatment side effects, other
health problems (also called "co-morbidities", like diabetes and cancer/arthritis
and cancer) and other resources.
Phone: 1-800-537-8295 to talk to a patient
advocate
Sister Circles
(Native-American Survivors)
When: 6:00 p.m.
3rd Thursday of each month
Where: Hastings Hospital Dining Room,
Information: Network of Strength,
(918) 494-8808
Breast Cancer Support Group
When: 2nd Tuesday of month, 5:00pm.
Where:
4913 W.
Information: (405) 948-4900
Take Charge!
http://www.health.state.ok.us/program/cds/breastcervical.html
Phone:
http://www.health.state.ok.us/program/cds/ocare.html
Phone:
http://www.tulsaprojectwoman.com
In cooperation with
medical facilities and concerned individuals, Tulsa Project Woman, Inc.
is dedicated to providing breast health education, and access to breast
health care. This includes surgical consultations, free mammography,
diagnostic procedures and surgical services that will facilitate the
early diagnosis of breast cancer for women with no health insurance and
limited financial resources.
Address:
Phone: (918) 834-7200
The American Breast Cancer
Foundation
http://www.abcf.org
Provides financial
assistance to uninsured and underinsured women and men of all ages for breast
cancer testing. This includes annual screenings for women over 40, as well
as support services for breast cancer patients.
Phone: 1-877-Key-2-Life (1-877-539-2543)
Breast Cancer.org
Dedicated to providing the most
reliable, complete, and up-to-date information about breast cancer. Offers survivor stories, chat rooms,
pictures of breast cancer and reconstruction, online conferences and
other great links.
Living Beyond Breast Cancer
A nonprofit
organization dedicated to empowering all women affected by
breast
cancer to live as long as possible with the best quality of life.
Helpline:
1-888-753-5222
Imaginis
A breast
cancer and women's health resource. Within our thousands of pages of
physician-edited information, we explain complicated medical terms in
everyday language to assist you in making informed decisions.
Dr. Susan Love Research Foundation
Website
provides comprehensive information about breast cancer, women’s health,
and the Foundation’s work to eradicate breast cancer. Use the “Health Watch” blog to share
thoughts and ask questions.
National Breast Cancer Foundation
http://www.nationalbreastcancer.org
Mission is to save lives by increasing awareness of breast
cancer through education and by providing mammograms for those in need. Complete
resource library, and online educational video “Beyond the Shock.” (Also
in Español.)
Susan G. Komen Foundation
http://cms.komen.org/komen/index.htm
Comprehensive
information about breast cancer, to include treatment, survivorship,
complementary therapies, and breast cancer research.
Helpline: 1-800-I’M-AWARE
(1-800-462-9273) Se habla español.
National
http://www.nabco.org
NABCO provides information about breast cancer
and acts as an advocate for the legislative concerns of breast cancer
patients and survivors.
Phone: 1-888-806-2226
Breast Cancer Network of Strength
(Formerly Y-ME)
http://www.networkofstrength.org
The
mission of Breast Cancer Network of Strength is to ensure, through information,
empowerment and peer support, that no one faces breast cancer alone. YourShoes™ is Breast Cancer Network of
Strength’s peer support program that includes a 24/7 breast cancer support
center staffed by trained breast cancer survivors providing peer support
through a toll-free hotline, e-mail and support groups. Interpreters available for 150 languages. Site
has information on breast cancer, quality of life and local affiliates
/ support groups.
Hotline: English 1-800-221-2141 / Español 1-800-986-9505
Facing Our Risk of Cancer Empowered (FORCE)
Mission is to improve the lives of individuals and families
affected by hereditary breast and ovarian cancer. Information on latest research, and resources
to determine whether they are at high risk for breast and ovarian cancer
due to genetic predisposition, family history, or other factors.
Phone: 1-866-288-7475 (RISK)
Toll free helpline, E-mail: info@facingourrisk.org
FDA - Information on Breast Implants
http://www.fda.gov/cdrh/breastimplants/index.html
Site provides information
on both approved breast implants and investigational (under study for
safety and effectiveness) breast implants to aid in reconstruction decisions.
American Society of Plastic
Surgeons
http://www.plasticsurgery.org/patients_consumers/index.cfm
Information on breast reconstruction
procedures, 3-D animation, photo gallery
Pamper yourself and bring a friend for a day away!
When: Two sessions – contact for latest
Where: Log Cabin
Hope Unitarian Property 82nd and
Information: Carey Edwards, Breast
Cancer Network of Strength, (405) 494-8808 or Email: cedwards@networkofstrength.org
Reach To Recovery
One-on-one volunteer visitation
program for women with breast cancer.
When: Call to arrange a visit
Where: American Cancer Society
6525 N. Meridian,
Information: Sue Ellis (405) 843-9888
Breast Cancer
Wellness Group
When: Monthly (5:00-6:15
pm)
Where:
Information: Kelly O'Neil 405-231-3002
SHOUT Young
Women Cancer Survivors
Group
is open to all cancers, but largely young breast cancer survivors
When: Usually
4th Thursday of month, 6:30pm (check website for events)
Where: Locations
vary, call ahead or check website
Information: Sandi
Troup: (405) 962-9012 or Molly Fritch (405) 740-7705
Website: www.shout-okc.org
Monday’s Friends
Breast cancer support group.
When: Call for schedule
Where:
Information: (405) 620-3527
Breast Cancer Awareness & Support
Group
When: 1st Monday of the month, 7:00pm.
Where:
Information: Judy Hays, (405) 723-0393 or (405) 672-2147
Breast Cancer Support Group
When: 2nd Tuesday of month, 5:00pm.
Where:
4913 W.
Information: (405) 948-4900
SOS - Support
Our Suvivors
Breast cancer support group
When: 12:00 - 1:00 p.m. - 3rd Thursday
each month
Where: OU Breast Institute, 3rd Floor
OU Physicians Building
Information: Tonya
Hughes (405) 271-8001, Ext. 48527
Promise
A support group
for people who have experienced a mastectomy or have been diagnosed with
breast cancer.
When: 3rd Monday of
the month, 7:00-9:00 pm
Where:
Information:
Pink Ribbon
Sisters
Newly
diagnosed and breast cancer survivors.
When: 2nd Monday of month
6:45-8:00pm
Where: Just west
of the Warren Clinic, turn west on 66th street. 4606 E 67th St, Bldg 7, Suite 314, Tulsa,
OK 74136
Information: Carey Edwards, (918)
494-8808, cedwards@networkofstrength.org
Website: http://www.networkofstrength.org
Norman Regional
Breast Cancer Support Group
To provide
education and emotional support to patients diagnosed with breast cancer.
Meetings consist of the presentation of an educational topic or demonstration,
followed by a question and answer session and/or open discussion of patient
concerns.
When: 7:00 p.m. - 1st Tuesday each
month
Where:
Information: Karen Saunkeah (405)
307-2620, ksaunkeah@nrh-ok.com
Breast Cancer
Support Group (Breast Imaging of
For any woman diagnosed with breast cancer, of any age
When: 7 p.m. first Thursday of the
month
Where: Breast Imaging
Oklahoma,
Information:
Young Women's
Group
When: 6:30-8:30pm,
First Tuesday
Where: 4606 E. 67
Street - Building 7,
Information: (918) 494-8808
“Lunch Bunch” – Breast Cancer Support Group
Includes educational information, sharing, moments for
relaxation and laughter.
When: 1st Wednesday of the month, 12:00-2:00pm,
reservations required
Where:
Information: (405) 943-4673
American Lung Association
Dedicated to preventing lung disease and promoting lung
health. Website has interactive decision support tools to answer the
question “What does the clinical information mean to me?” You will receive a personalized treatment
options report tailored to your diagnosis. Your report will provide the
pros and cons of each treatment, side effects, questions to ask your
physician, plus access to relevant summaries of clinical studies.
Also in Español.
Phone:
1-800-548-8252
E-mail: info@lungusa.org
Lung Cancer
Dedicated solely to patient support and advocacy for people
living with lung cancer and those at risk for the disease. Offers programs designed to help improved
the quality of life of people with lung cancer and their families. Programs
include education about the disease, psychosocial support, and advocacy
about issues that concern lung cancer survivors.
Phone: 1-800-298-2436
E-mail: info@alcase.org
It’s Time to Focus on Lung Cancer
Site contains relevant and easy to understand information
about lung cancer such as Lung Cancer 101, facts about clinical trials,
survivor stories and support resources.
Phone: 1-877-646-LUNG (1-877-646-5864)
E-mail: info@cancercare.org
http://www.meds.com/lung/lunginfo.html
An electronic library of comprehensive educational materials
on cancer for healthcare professionals and patients.
http://www.asbestos.com/mesothelioma
The Mesothelioma Center offers the most comprehensive
and updated information on asbestos exposure and mesothelioma. Contains
resources on all asbestos issues ranging from occupational exposure to
mesothelioma treatment options.
Phone: 1-800-615-2270
E-mail: webmaster@asbestos.com
Mesothelioma Web
http://www.mesotheliomaweb.org
For nearly a decade, Mesothelioma Web has been one of
the most comprehensive sites on mesothelioma, providing facts about symptoms,
diagnosis, treatments, palliative care, nutrition, and chemotherapy,
as well as information on clinical trials.
Phone: 1-877-FOR-MESO (367-6376)
Better Breathers
For people who share the
common experiences and problems of chronic pulmonary disease.
When: Monthly on the second Friday
of the Month.
Where:
Information: Call (405) 752-3600 to enroll
Better Breathers
A group for those coping
with chronic lung disease.
When: Call for schedule.
Where: Deaconess Medical Office North / 5401
Information: Contact: (405) 604-6000
Better Breathers
A group for those coping
with chronic lung disease.
When: Call for schedule.
Where:
Information: (405) 610-3627
Sooner Nu-Voice Laryngectomee
Club
When: Call for schedule.
Where: Support group and patient
visitation.
Information: Larry Bisel: (405) 720-0884
/ Julie Bornhorn (405) 947-4008
http://www.ccalliance.org
Dedicated to ending the suffering caused by colorectal
cancer through patient support, education, research and advocacy. The
CCA website includes information about screening, treatment, clinical
trials, quality of life, financial issues, “buddies program” and much
more.
Survivor Helpline: 1-877-422-2030 / Phone: (877) 422-2030
E-mail: info@ccalliance.org
Colorectal Cancer Coalition (C3)
http://www.fightcolorectalcancer.org
Colorectal cancer is preventable,
treatable, and beatable. Website
offers a guide to aid you in understanding your diagnosis and treatment
options and to provide you with a range of resources to help you move
through your journey with colorectal cancer.
Address: 1225 King Stret, 2nd Floor,
Phone: 703-548-1225
E-mail: info@fightcolorectalcancer.org
National Colorectal Cancer Research
http://www.eifoundation.org/national/nccra
Co-founded by Katie Couric and Lily Tartikoff, the NCCRA
is dedicated to the eradication of colon cancer by harnessing the power
of celebrity to promote education, fundraising, research, and early medical
screening. The site offers information on screening tests, a health checklist,
a factsheet, and information on clinical research.
Phone: 1-800-872-3000
Colorectal Cancer Network
http://www.colorectal-cancer.net
Mission is to eliminate colon cancer and support patients. Hosts
a comprehensive website with information, resources and support.
Phone: (301) 879-1500
E-mail: CCNetwork@colorectal-cancer.net
The Susan Cohan Kasdas
The foundation aims to educate everyone about screenings
and ensure that no individual is unable to access proper screening, providing
psychological support for those with the disease and aiding clinical
trials and cutting-edge research. Information
about screening, colostomy, and illustrations of surgical options.
Phone: (410) 244-1778
E-mail: info@coloncancerfoundation.org
United Ostomy Associations of
UOAA is an association of affiliated, nonprofit, support
groups who are committed to the improvement of the quality of life of
people who have, or will have, an intestinal or urinary diversion.
American Society of
Patients & Consumers
link provides patients and the general public with up-to-date and useful
information about diseases of the colon, rectum and anus. ASCRS offers a variety of educational
materials and informational brochures.
United Ostomy Association
Support Group
When: Call for schedule
Where:
Information: Nancy Dobbs: (405) 752-3183
Ostomy Support
Group
Support Group for ostomy patients and their family and/or friends.
When: 4:00 p.m.
- 4th Monday each month
Where: McAlester Regional Health Center
One Clark Bass Blvd.
Information: Connie Davis RN 918-426-1800
Tulsa Ostomy
Association
UOA Mission: The United Ostomy Association is a volunteer-based health
organization dedicated to providing education, information, support, and
advocacy for people who have had or will have intestinal or urinary diversions.
When: 4th Thursday
each month (except Nov. & Dec.) 7:00-8:30 p.m.
Where:
Information: Kay
Pugh 918-446-8542 Rick Stephens 918-437-1317
http://www.ostomyok.org/tulsa/
Take Charge!
http://www.health.state.ok.us/program/cds/breastcervical.html
Phone:
http://www.health.state.ok.us/program/cds/ocare.html
Phone:
National Ovarian Cancer Coalition (NOCC)
NOCC raises awareness about ovarian cancer and promotes
education about the disease. Offers publications for newly diagnosed,
support groups, a database of gynecologic oncologists searchable by state,
and other educational materials.
Address:
Phone: 1-888-OVARIAN (1-888-682-7426)
E-mail: nocc@ovarian.org
National Cervical Cancer Coalition (NCCC)
A grassroots nonprofit organization dedicated to serving
women with, or at risk for, cervical cancer and HPV disease.
Ovarian Cancer National
Works to increase public and professional understanding
of ovarian cancer and to advocate for research. The
Address:
Phone: 1-866-399-6262 (Toll
Free)
E-mail: ocna@ovariancancer.org
The Ovarian Cancer Research Fund (OCRF)
An organization devoted to the formulation of early diagnostic
treatment programs and research towards the ultimate conquest of ovarian
cancer. Supports patients
and their loved ones in understanding this disease and its treatment
as well as to provide outreach programs and raise public awareness.
Phone: 1-800-873-9569
E-mail: info@ocrf.org
Gynecologic Cancer Foundation - Women’s Cancer Network
Keeps women informed and to enable them to be their own
health advocates. Assists
women who have developed cancer, as well as their families, to understand
more about the disease, learn about treatment options, and gain access
to new or experimental therapies.
Address: 230 W. Monroe,
Phone: 1-800-444-4441
E-mail: info@thegcf.org
Eyes on the Prize
Online support and information for gynecologic cancer
survivors.
Facing Our Risk of Cancer Empowered (FORCE)
Mission is to improve the lives of individuals and families
affected by hereditary breast and ovarian cancer. Information on latest research, and resources
to determine whether they are at high risk for breast and ovarian cancer
due to genetic predisposition, family history, or other factors.
Address: 16057
Phone: 1-866-288-7475 (RISK)
Toll free helpline
E-mail: info@facingourrisk.org
CONVERSATIONS: The International Ovarian Cancer Connection
An international newsletter for those fighting ovarian
cancer providing hope, humor, support and information about treatment
options and coping tips. Survivor-to-fighter matching service available.
(806) 355-2565
HOPE in Okahoma
A support group for women
with gynecological cancers.
When: 1st Saturday of the month
Where: OU
Information: (405) 271-8001, Ext. 48165
Website: http://www.hope.ouhsc.edu
"Anna's Belles" Ovarian
Cancer Support Group
Support for ovarian cancer patients
When: Once a month on Saturday
Where: Cancer Treatment
Center of Tulsa, 10109 D 79th St, Conference Room D, 1st Floor
Information: Anna
Schlichting, RN (918) 247-6308 or anna@intcon.net
SHARE
http://www.sharecancersupport.org
A NY-based organization that offers toll-free survivor-led
support to those affected by breast or ovarian cancer to ensure that
no one faces cancer alone.
Ovarian Hotline: 1-866-537-4273
(Also available in Español and other languages)
Men's Cancer Resource Group
A support network that runs a 24-hour information line
serving prostate cancer survivors and concerned professionals.
Phone: 1-800-227-2345
National Prostate Cancer Coalition
http://www.fightprostatecancer.org
The National Prostate Cancer Coalition (NPCC) sets the
standard for rapidly reducing the burden of prostate cancer on American
men and their families through awareness, outreach, and advocacy.
Address:
Toll-free: 1-888-245-9455 / Phone:
(202) 463-9455
E-mail: info@fightprostatecancer.org
US TOO! Prostate Cancer Education & Support
Dedicated to communicating timely and reliable information
enabling informed choices regarding detection and treatment of prostate
cancer. Strives to enhance the quality of life for all those affected
by prostate cancer.
Address:
Toll-Free: 1-800-80-UsTOO (1-800-808-7866)
/ Phone: (630) 795-1002
E-mail: ustoo@ustoo.org
Prostate Cancer Institute
http://www.prostate-cancer-institute.org
Information regarding prostate cancer and treatment options
for prostate cancer patients and their families.
Address:
Toll-Free Nurse Line: 1-866-469-7733
/ Phone: (952) 852-5560
E-mail: publisher@prostate-cancer-institute.org
The Testicular
A comprehensive site with online support and resources
including specific information on surgery, testing, treatment, reconstruction
and fertility.
Address:
Us Too!
Prostate cancer support group.
When: 3rd Tuesday of each month,
6:00 pm.
Where: Location alternates between Deaconess
and INTEGRIS Baptist
Information: Deaconess (405) 604-4298 or INTEGRIS
Baptist (405) 943-4673
Us Too!
A monthly support and resource
group for survivors of prostate cancer.
When: 1st Monday of the month,
5:30-7:00 pm
Where:
Information: Steve Fontenot, RN MSN CNL,
(405) 752-3388 stephen.fontenot@mercy.net
Us Too!
Educational support group for anyone impacted by prostate cancer.
When: 2nd Thursday
each month, 7:00-8:00 pm
Where: St. John Medical Center, Mary
K Chapman Health Plaza, lower level classroom D, 1819 E. 19th St., Tulsa,
OK, 74104
Information: Call
(918) 744-0123 or www.stjohncancercenter.com
Us Too! Shawnee
Regional
Prostate cancer support group
When: 3rd Mon 6 - 7:30 pm
Where: Unity North
Shawnee Cancer Ctr, 1102 W. MacArthur
Information: Marla Mauldin RN BSN
OCN (405) 878-3445
"Man to Man" Prostrate
Cancer Support Group
Prostate cancer support group for men and their spouses.
When: 7:00 p.m.
- 2nd Monday each month
Where: Cancer Treatment Centers of
America - Conference Room C, 1st floor - 10109 E. 79th Street (81st Street & Highway
169) Tulsa
Information: (918) 286-5585
Man to Man
Prostate Cancer Support Group
Group education, discussion and support for men and their families that
are touched by prostate cancer.
When: 6:00-8:00 p.m. 3rd Tuesday of
each month
Where:
Information: Elton March 1-580-439-5052,
OR 1-580-251-8557 / 8844
Man to Man
Prostate cancer support group for men and their spouses
When: call for meeting
information
Information: Mike McGowan (918) 424-6453
Pancreatic Cancer Action Network (PanCAN): Patient and
Liaison Services
Connect with other survivors and caregivers, attend support
groups and educational meetings, and request assistance with financial
or insurance issues. Complete list of educational and support resources,
inspirational stories, and tips from other survivors.
Address:
Phone: 1-877-272-6226
Email: pals@pancan.org
Pancreatica.org
A worldwide gathering point on the Internet for the latest
news and information in regard to clinical trials and other medical care
in the treatment of pancreatic cancer. Comprehensive links page, plus
frequently asked questions about pancreatic cancer, clinical trials database,
medical literature and survivor stories.
Address:
Phone: (831) 658-0600
Southwest Program for Pancreatic Cancer
http://w3.ouhsc.edu/surgery/pancan/index.htm
A program to establish a network consisting of every pancreatic
cancer patient and survivor who resides in
Address: Daniel
J. Brackett / Surgery / OUHSC,
Phone: (405) 271-2108
E-mail: daniel-brackett@ouhsc.edu
The Lustgarten Foundation for Pancreatic
Cancer
http://www.lustgartenfoundation.org
Foundation to advance the scientific and medical research
related to the diagnosis, treatment, cure and prevention of pancreatic
cancer; provides informational support for
pancreatic cancer patients, their families, and friends. Download “Understanding Pancreatic Cancer”
from the patient resources.
Phone: 1-866-789-1000
Pancreatic Cancer Support
Group
Open to anyone who has been affected by pancreatic cancer.
When: Last Thursday
of each month, 6:00 pm
Where: O'Donoghue
Conference Room,
Information: Daniel
Brackett, (405) 271-2108, daniel.brackett@ouhsc.ecu
Website: http://w3.ouhsc.edu/surgery/pancan/index.htm
Pancreatic Cancer Support
Group
Open to anyone who has been affected by pancreatic cancer.
When: 2nd Tuesday
of each month, 6:00 pm
Where: OU
Information: Daniel
Brackett, (405) 271-2108, daniel.brackett@ouhsc.ecu
Website: http://w3.ouhsc.edu/surgery/pancan/index.htm
The Leukemia and Lymphoma Society
The goal of the society is to find cures for leukemia,
lymphoma, Hodgkin's disease, and multiple myeloma and to improve the
quality of life of patients and their families. The society provides
patient financial aid for specified treatment expenses and transportation,
family support groups, First Connection (a professionally supervised
peer support program), referrals and school re-entry materials.
Address: 500 N. Broadway,
Phone: (405) 943-8888 / 1-888-828-4572 (Toll Free)
E-mail: sherry.martin@ils.org
International Myeloma Foundation (IMF)
Supports education, treatment, and research for multiple
myeloma. They provide a toll-free hotline, seminars, and educational
materials for patients and their families. Assistance is provided in
many languages.
Phone: 1-800-452-CURE (800-452-2873)
E-mail: theIMF@myeloma.org
Lymphoma Research Foundation (LRF)
The LRF website offers a wide range of support services
and programs for patients and loved ones affected by lymphoma. Whether
you are newly diagnosed, want detailed information about lymphoma, looking
for ongoing support, or seeking help with long-term survivorship, LRF
is here to help.
Phone: 1-800-500-9976
E-mail: helpline@lymphoma.org
The Multiple Myeloma Research Foundation (MMRF)
Detailed explanations of myeloma, treatment options and
clinical trials. Free informational
booklets is designed to help newly diagnosed patients and their friends
and families to better understand multiple myeloma and its complications.
Address:
Phone: (203) 972-1250
E-mail: info@themmrf.org
The Mesothelioma Center
http://www.asbestos.com/mesothelioma
The Mesothelioma Center offers the most comprehensive
and updated information on asbestos exposure and mesothelioma. Contains
resources on
all asbestos issues ranging from occupational exposure to mesothelioma
treatment options.
Phone: 1-800-615-2270
E-mail: webmaster@asbestos.com
Mesothelioma Web
http://www.mesotheliomaweb.org
For nearly a decade, Mesothelioma Web has been one of
the most comprehensive sites on mesothelioma, providing facts about symptoms,
diagnosis, treatments, palliative care, nutrition, and chemotherapy,
as well as information on clinical
trials.
Phone: 1-877-FOR-MESO (367-6376)
All About Your
Blood
Learn about the connection between blood and cancer, and blood cancers.
When: 2:00 p.m.
each Thursday
Where: Cancer Treatment
Centers of
Information: (918) 286-5585
Momentum
A monthly support and resource group for survivors of
leukemia, lymphoma and myeloma.
When: 2nd Tuesday
of the month, 6:00-7:30 pm
Where:
Information:
Family Support Group
For anyone impacted by blood
cancers.
When: 1st Wednesday of month, 7:00pm
Where: Radiation Oncology Waiting Area
Facilitator: Peg Andre, RN, OCN (918) 639-7495
Myeloma Support Group
Educational support group
for anyone impacted by myeloma.
When: 3rd Wednesday
of the month, 1:30 pm
Where:
Facilitator:
Myeloma Support Group
When: 3rd Thursday
of month, 6:00 pm
Where:
OU
Facilitator:
Parents’ Support Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 2nd Wednesday
of the month, 12:00 pm
Where: Conference Room,
Children’s Hospital at OU
Medical Center /
Facilitator:
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 1st Tuesday of
every month, 6:00 pm
Where:
Facilitator: Maria Aymat (405) 636-7560
Spanish-Speaking Support
Group
Sponsored by the Leukemia
and Lymphoma Society, but open to any diagnosis
When: 1st Wednesday
of every month, 5:00 pm
Where:
OU
Facilitator: Carmen
Soriano, RN (405) 271-79304
National Brain Tumor Foundation
Comprehensive site offers Information about brain tumors,
treatment information, survivor stories, support groups, and publications. Resources also available in Español.
Phone: 1-800-934-2873
OKBTF is dedicated to meeting the needs of Oklahoma families,
caregivers and patients affected by primary brain or central nervous
system tumors. We work to provide for needs through education, advocacy,
research and service. Whatever
your needs, whether financial, physical, mental or spiritual, we will
work with you to fight the battle.
Address:
Phone: (405) 843-HOPE (4673)
E-mail: okbtf@okbtf.org
American Brain Tumor Association
Offers free publications, educational programs, social
service consultations by telephone, a mentorship program, support group
lists, a resource list of physicians, a pen pal program and funds research. Also has a special website for kids.
Address:
Phone: 1-800-866-2282
E-mail: info@abta.org
The Brain Tumor Society
Provides individualized patient/family information, publishes
educational materials, sponsors professional and patient conferences,
and funds research. Website offers offer the latest
information for the entire brain tumor community, from newly diagnosed
patients, to survivors, families and healthcare professionals.
Phone: 1-800-770-8287
E-mail: info@tbts.org
The Guardian Brain Foundation
The mission of The Guardian Brain Foundation is to help
advance neuroscience research, provide support services and to improve
quality of life for adults and children diagnosed with injuries and tumors
of the brain.
(516) 679-5075
E-mail: info@guardianbrain.com
Tulsa Strong Mind, Strong
Body, Strong Spirit Support group
For brain tumor patients and caregivers.
When: 4th Thursday
of every month, 6:30-8:00 pm
Where: Various
locations in
Information: Lisa
Obey, Patient Navigator, (405) 843-4673, patientnavigator@okbtf.org
Please confirm location and
RSVP your attendance by the Wednesday before
Oklahoma City Strong Mind,
Strong Body, Strong Spirit Support group
For brain tumor patients and caregivers.
When: 2nd Thursday
of every month, 6:30-8:00 pm
Where: Various
locations in
Information: Lisa
Obey, Patient Navigator, (405) 843-4673, patientnavigator@okbtf.org
Please confirm location and
RSVP your attendance by the Wednesday before
International Association of Laryngectomees (IAL)
An association of over 230 laryngectomee clubs. Clubs
provide pre- and post-operation visits to laryngee cancer patients and
continuing support education for laryngectomees and families.
Phone: Toll-free 1-866-425-3678
(1-866-IAL-FORU)
E-mail: IAL@larynxlink.com
Web Whispers
Provides practical and educational information and support
by way of the Internet to laryngectomees and to all persons diagnosed
with or treated for cancer that affects the larynx or those who have
suffered damage to the vocal cords. Support is directed
toward creating understanding, providing educational opportunities and
rehabilitation assistance.
Address: Terry Duga /
E-mail: listmgr@webwhispers.org (E-mail list manager)
Mouth Cancer Foundation
http://www.mouthcancerfoundation.org
Aims to help patients and health professionals find free
information on mouth, head & neck cancers easily. It provides direct
links to the relevant sections of existing cancer websites and includes
patient stories as well as an active message board, which acts as an
easily accessible online support group.
E-mail: info@mouthcancerfoundation.org
Support for People with Oral and Head and Neck Cancers,
Inc. (SPOHNC)
Offers a program of support and information addressing
the emotional, psychological and humanistic needs of oral and head and
neck cancer patients.
Phone: 1-800-377-0928
E-mail: info@spohnc.org
Sooner Nu-Voice Laryngectomee
Club
When: 2:00 PM 2nd Sunday of each month
Where:
6430 N. Portland /
(Use the far south entrance
with the green awning.)
Information: Julie
Bornhorn, President,405-834-9321, soonernuvoice1@cox.net
Ann
Miller, 405-282-4740 / Tracy
Grammer, SLP, OUHSC 405-271-7559
SPOHNC - Support
for People with Oral, Head & Neck Cancer
This group is patient-directed. For patients with challenges when confronted
with head, throat, nose and neck cancer. Only 4 to 5 per cent of all diagnosed
cancers are oral, head and neck, but the problems associated with these cancers
present unique challenges.
When: 6:30 - 8:30 p.m., First Tuesday
of each month
Where: Hardesty
Public Library,
Information: Christine Griffin, a
registered nurse (retired) at (918) 271-2483
or write:
SPOHNC of
New Voice Club
- Head & Neck
Support, information and education for laryngectomy, and head and neck
cancer patients with communication problems, and their families.
When: 11:30 a.m.
to 1:00 p.m. - 2nd Thursday each month
Where:
Information: (918) 744-0123 or www.stjohncancercenter.com
Facilitator: Barbara King (918) 543-3833
Head & Neck
Cancers - Support & Education
When: 1st Thursday
of each month, 6:00-7:30 p.m.
Where: Belle
Information: Brad Quillen
(405) 842-3222
Melanoma International Foundation
The mission of the Melanoma International Foundation is
to ease the burden and bring hope to the journey of melanoma through
patient support, early detection education and advocacy. We provide hope
and guidance to melanoma patients and families by empowering them with
correct up-to-date information.
Phone: Toll-Free 1-866-463-6663
or 610-942-3432
E-mail: info@melanomaintl.org
The Skin Cancer Foundation
Provide accurate, up-to-date, and
essential information on all forms of skin cancer, sun protection strategies,
skin cancer prevention, and self-examination.
Phone: 1-800-SKIN-490 (800-754-6490)
E-mail: info@skincancer.org
ThyCa: Thyroid Cancer Survivors
Association, Inc.
A network of services that
link thyroid cancer survivors and health care professionals around the
world..
Toll-Free: 1-877-588-7904
E-mail: thyca@thyca.org
About Liver Tumors
http://www.aboutlivertumors.com
A resource for liver patients and concerned persons that
includes FAQ's, definitions, as well as a portal to contact physicians
and support groups.
Phone: (502) 629-3380
E-mail: info@AboutLiverTumors.com
American Liver Foundation
http://www.liverfoundation.org
Support and referrals for people with liver cancer and
liver diseases.
Phone: 1-800-GO-LIVER
E-mail: info@liverfoundation.org
American institute for Cancer Research
A cancer charity that fosters research on
diet and cancer prevention and educates the public about the results. Information to help make better informed
decisions and reduce risk of secondary tumors and recurrence.
Phone: 1-800-843-8114 (Free nutrition hotline, talk to a registered AICR dietitian)
Cancer Information: Nutrition
http://www.caring4cancer.com/go/cancer/nutrition
Good nutrition can be your ally in the fight against cancer,
helping to manage symptoms and aid healing and recovery. Through the
links in the column to the right, find practical advice on nutrition
before, during, and after treatment, including guidance on what to eat
(and when), easy recipes, and useful tips.
The National Center for Complementary and Alternative
Medicine is the Federal Government's lead agency for scientific research
on complementary and alternative medicine (
Memorial Sloan-Kettering: Herbs & Botanicals
http://www.mskcc.org/mskcc/html/11570.cfm
An information resource presented by Memorial Sloan-Kettering
Integrative Medicine Service. Provides evidence-based information about
herbs, botanicals, supplements, and more.
Battling Cancer
with Better Nutrition
Information on cancer prevention with nutrition and coping techniques
for treatment side effects.
When: 1st Tuesday of month (every
other month), 12:00 pm
Where:
Information: (405) 744-0123
or www.stjohncancercenter.com
Nutrition and
Cancer Class
A class focusing on the use of food and nutrients to improve outcome in
cancer treatment. Family and friends welcome.
When: 11:00 a.m. each Thursday
Where: Cancer Treatment
Centers of
Information: (918) 286-5585
Mind/Body medicine
Different topics each week pertaining to stress management, dealing with
depression, overcoming anxiety, fighting fatigue, mind/body skills, etc.
When: 1:00 p.m.
each Monday
Where: Cancer Treatment
Centers of America - Conference Room A - 10109 E. 79th Street (81st Street & Highway
169 ) Tulsa, Oklahoma 74133
Information: (918) 286-5585
Relaxation
and Imagery
Relaxation, a state of reduced tension and increased mental energy, is
useful imagery to enhance healing.
When: 1:00 p.m. each Wednesday
Where: Cancer Treatment
Centers of America - Conference Room A - 10109 E. 79th Street (81st Street & Highway
169) Tulsa, Oklahoma 74133
Information: (918) 286-5585
Labyrinth Gathering
Learn how to walk Mercy's labyrinth and gain peace from
an ancient practice. This class is designed for cancer patients, their
families and friends. This is a low-impact, slow walking activity with
great emotional benefits. Walk
the labyrinth and feel the stress melt away with this group!
When: Wednesdays,
2-3pm (Call to register)
Where: Where:
Information:
Relaxation Relief
Learn how to cope with anxiety and distress by using mind
and breathing techniques in this weekly class to help cancer patients,
their families and friends reduce their level of stress associated with
cancer. The class teaches deep breathing techniques, meditation, guided
imagery and the power of prayer.
When: Thursdays,
2-3pm (Call to register)
Where: Where:
Information:
“Dare to Care:
Yoga Classes
Free Yoga classes for anyone affected by
cancer. Classes are coed, very
basic, beginner Yoga. Always
get your Doctor’s approval before beginning any type of exercise program.
Please wear comfortable exercise clothing to class, and participants will
need to bring their own yoga ‘sticky’ mat.
When: Tuesdays: 5:45 p.m. , Studio
3 / Thursdays: 9:00 a.m. Studio 3
Where:
Information:
Tobacco Use Prevention Coalition
When: Call for class dates and times
Where: Oklahoma City County Health Department,
Information: (405) 425-4498
Smoke Stoppers
Ongoing smoking cessation group program.
When: Call for date and time
Where: St Francis
Hospital Education Center, 6161 S Yale
Information: (918) 494-4400
Cancer Journaling Group
No writing
experience is necessary to participate. You
may bring your personal journal or use paper and pens furnished at the
meeting. No fragrances (including
hair products, scented lotions, etc.) please, as many members are very
sensitive. Newcomers are always welcome. Topics
vary each month.
When: 1st Saturday
of month, 9:30-11:30 am
Where:
Information: (405) 943-4673
Expressive Arts Whole Family
Group
An art therapy group for
individuals & families affected by cancer.
When: Call for dates – monthly 6:30 pm
Where:
Information: Kelley O’Neal (405) 231-3002
Stitching For Sanity
Open to anyone interested
in knitting and/or crocheting lap robes and afghans to be given to persons
currently in treatment for cancer. We have donated yarn, and instruction
is available!
When: 1st and 3rd Monday
of the month, 2:30-2:30pm (call to verify)
Where:
Information:
Wings of Hope
Learn and practice the ancient
art of Origami to create butterflies to be attached to cards to be given
to newly-diagnosed persons. Beginners
are welcome – instruction is available.
When: 1st and 3rd Monday
of the month, 12:30-2:30pm (call to verify)
Where:
Information:
Creative Experience
Workshop
For anyone affected by cancer, including caregivers. No art talent needed
to attend; only desire to play creatively.
When: Call for dates and times
Where: Troy & Dollie
Smith Cancer Center Library, 1st floor Bulding D /
Information: (405) 943-HOPE
(4673)
Expressive Writing
A class designed for cancer patients, their families and
friends to learn how to use writing to relieve the stress associated
with cancer. Come learn how to express yourself through different writing
styles - journaling, creative writing, poetry, blogging, or whatever
you chose to try.
When: Mondays,
2-3pm (Call to register)
Where: Where:
Information:
Musical Discoveries
No previous musical experience needed. Listen and make
music. A class designed for cancer patients, their families and friends
to learn how to use music to combat the stress associated with cancer.
When: Tuesdays,
2-3pm (Call to register)
Where: Where:
Information:
This resource guide was developed by People Connected
By Cancer
Last update: Tuesday, May 5th, 2009
For any updates, corrections, or suggestions,
